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Cyclosporine? Anyone else have these problems?

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Old 01-21-2010, 03:23 PM #11
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erinhermes erinhermes is offline
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erinhermes erinhermes is offline
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Heart Hi Joanmarie!
Hi sweetheart! How are you? Thanks for your sweet reply!

I truly believe it IS the cyclosporine that has kicked my butt - I have NEVER felt this bad - except for b/4 my dx.......I am just wiped OUT all of the time...can never get enough sleep......edema through the roof......hopefully this will all go away soon!

My neuro does truly believe that it is the cyclosporine that has caused a lot of this damage, b/c I never had broken bones or all of this fatigue b/4, so I'm off forever! We are going back to Cellcept after the Mayo - YAY!

Enough about me - how are YOU? Are you feeling better?

Love,
Erin






Quote:
Originally Posted by Joanmarie63 View Post
Erin,

My Dr. told me to start taking Co Q-10, so I looked it up and it spoke of it helping Cyclosporine toxicity, maybe you have too much cyclosporine in your system?

I don't know anything about that medication but I thought of you when I read about the Co Q-10 on the Mayo site. It might be worth asking your Dr. about.

Good luck sweetie.
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Old 01-22-2010, 01:10 PM #12
rach73 rach73 is offline
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Default Hi Erin
Sorry to hear that you have broken your thumb. I really hope that they dont find anything else on the bone scan.

I have emailed you via hotmail. I hope thats ok

Love
Rach
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