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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-21-2010, 03:23 PM | #11 | |||
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Hi sweetheart! How are you? Thanks for your sweet reply!
I truly believe it IS the cyclosporine that has kicked my butt - I have NEVER felt this bad - except for b/4 my dx.......I am just wiped OUT all of the time...can never get enough sleep......edema through the roof......hopefully this will all go away soon! My neuro does truly believe that it is the cyclosporine that has caused a lot of this damage, b/c I never had broken bones or all of this fatigue b/4, so I'm off forever! We are going back to Cellcept after the Mayo - YAY! Enough about me - how are YOU? Are you feeling better? Love, Erin Quote:
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Erin . |
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01-22-2010, 01:10 PM | #12 | ||
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Sorry to hear that you have broken your thumb. I really hope that they dont find anything else on the bone scan.
I have emailed you via hotmail. I hope thats ok Love Rach |
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