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Old 01-26-2010, 07:57 PM #1
AnnieB3 AnnieB3 is offline
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Sorry, guys, I'm going to be a bit of a downer.

Exercise in general is good for MG because a stronger muscle helps. But people like Tyson (sorry, you are a good example right now) should NOT exercise when their MG is bad.

I'm just concerned that someone might read this and think they can get their autoimmune disease better by exercising. I know that YOU guys "get it" but what if someone hasn't done all the research?

On a more positive note . . .

If you haven't tried the "Body Blade," it is simply amazing. I did a bunch of research before I got it. It is simple. You can use it sitting or standing. You get more bang for your buck/time. It exercises more than one muscle at once (which could be bad for people with MG). It's fun. And it's relatively inexpensive (shop NBC has a good price).

I'm jazzed about it. It's a lot of fun to use and, therefore, motivating.

Sorry to be a downer, Nicky, but I don't want anyone out there going into a crisis. I think exercise may be one of the most frustrating things about having MG.

Annie

Yes, it would be VERY cool if we lived in a housing area built by Warren Buffet or Bill Gates (for free) that included free transport to anywhere, including MG experts.
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bluesky (01-29-2010), DesertFlower (01-27-2010), Nicknerd (01-26-2010), Pat 110 (01-26-2010)
Old 01-26-2010, 08:09 PM #2
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Hey,

No, you are right, Annie...Tyson actually came to mind when I started my post and I was a bit worried about it (sorry Tyson!)...If you've got diaphragm weakness, I definately think that you have to be very careful with exercise, avoid it, or be careful in general, no matter where the weakness is...We have to listen to our bodies, and know when to give it a rest...

My sister got this 20-min. aerobic video of the woman from 'The Biggest loser.' She's going to bring it over on Thursday, and we're going to try it out...

Do any of you guys know what is a good exercise for the back of the thighs? The front of my thighs have developed some muscles, but the backs are sorta dumpy...lol...I'm able to exercise my butt, thighs, calve muscles, but those back of the thigh muscles are begging to be uplifted...Also, what's a good one for back fat....I think that the Cushing's introducing itself in the lipodystrophy depot, and it hasn't been welcomed! lol

I so agree, Pat! But the net will have to do, which is okay!
Nicky

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Old 01-26-2010, 08:40 PM #3
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I just received two Yoga DVD's I ordered from Amazon.com at a very resonable price. 'Yoga For Inflexible People' and Yoga for Weight Loss...beginners & beyond. Now I need to get an exercise/yoga mat, because my Mickey Mouse beach towel just doesn't cut it!

Hugs,
Pat
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Old 01-26-2010, 11:04 PM #4
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I went swimming this morning, with my Mum and Aunty. I use to go on my own, but driving afterward is a struggle. It was soooooo very nice to be in the pool, which was all but empty. I walk half the length of the pool and very slowly swim the other half.
Whew I am tired, but damn I feel good mentally. So I think I will be shoofing off with Ma and Aunty 3 times a week from now on. But don't fear, I won't push myself, if I'm tired I shall simply relax, it just seems to have a soothing affect on me, wish I had a pool in my back yard.
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Old 01-26-2010, 11:43 PM #5
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Hey Nicky,

Romanian deadlifts are really good for the backs of your thighs (hamstrings). Just be sure to watch the video well before doing it so you don't pull something. Your lower back gets a workout with it also.
http://www.bodybuilding.com/exercise...anian-deadlift


Keep up the good work (when you feel up to it)! It is great that you are feeling well, and with the exercise I hope you get even stronger in the coming days.


Kristy
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Old 01-27-2010, 12:58 PM #6
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When I first saw this, i intially thought, sign me up! Of course. But yeah. I agree with some people, whom (not to downsize their mg atall) can excersize without going into crisis, or having breathing difficulties, I think it's a great idea. Especially mentally, as you can get very down on yourself. Yet pushing yourself too much, like annie said could lead to a devistatinh abyss of symptoms that are hard to come back from


Yet i wish I was one of those persons who could excersize, I'm
not and need to deal w it.

Thanks for thinking of me though
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Old 01-27-2010, 02:36 PM #7
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Hang on in there its early days. You will get there in the end. Someone once told me MG is a marathon not a sprint. Its hard but you will get there.

Love
Rach
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Old 01-27-2010, 03:52 PM #8
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Redtail- I love swimming...I haven't actually gone in ages, but even with long lapses between swims, I feel at home in the water...The best is swimming at the beach (as opposed to a pool)...The bright, warm sun, the breeze, the cool sand...Just floating is so nice...

Thanks, Kristy...I exercise at home, so I'll have to get some small weights and try out those exercises...My sister said that squats should work for those muscles, but I don't feel it when I do them in my hamstrings, only my upper thighs and butt.

Tyson- Don't worry- when you find the right meds., or they start kicking in to full potential, you'll be back to exercising in no time...I came across posts from other guys around your age with MG on other forums, and they also take either Imuran/Cellcept/prednisone and they were back to their exercise routines once their meds. kicked in and their symptoms were minor (compared to before)...Don't worry, time is your friend- listen to Rach.
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