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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Hi Erin
yes thats my dream to fly to Australia this year but first i'm going to have to loose a lot of weight its 17.3 but im not going to starve just continue to eat healthy and exercise as much as i can my body is very good at telling me ive over done it i do listen like you do ha ha !!!!!!!!!!! the preds do their job but the side effects are hell !!!!! nicky the moonface went first after 6 weeks at last looking in the mirror wasnt a nightmare felt good ive never had any problems with cuts just a huge tummy and tomorrow i find out whats wrong with it from my Dr after stopping the preds i got my knee pain back thats worse but can be sorted latter i never thought it would be possible to manage with out any drugs and weight lost will be helping me i'm hoping!!!! alan |
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#2 | |||
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Quote:
I am not due to see the neuro until mid march. Since coming off my blood pressure has returned to 125/80 ,my blood sugar is on its way back at 6.0 now from its highest at 17.6 My thigh muscles last week had pains but are now gone . This week it has been my upper arms and shoulders . Feel 100% better with no neck,shoulder and back pressure. I am returning to work next week I feel that much better. |
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#3 | ||
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So glad to hear that you are off of pred, Alan. I was on pred for one year and I just took my last pill on Jan. 13/10. I truly hope that I don't have to go on it again. Sometimes it is necessary, unfortunately. I am starting to take some of the weight off but I have a LONG way to go.
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#4 | |||
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Hi Alan,
its great your off the pred. I do hope you get to Australia, it is a gorgeous place, although summer time is rather hot, and tiring. Hope things keep improving for you Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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#5 | |||
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I can normally take weight of easy but having taken 28lbs off in October in Two weeks before the pred clicked in It has been a struggle since and water retension becomes a real problem. I have a waking seat cane and use it to get around two or thee miles intwo hours or more by sitting down when the numbness in my right leg kicks in. Even slow take one wrong food and my weight increases not decreases. I hope you have more success in your reduction for your Ozz trip |
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