The plasmapheresis isnt doing its job so much this time...I was so ready to feel better, but im hardly better. I can swallow, and breathe, yet they arent the best.

Today while driving to the hospital for my 6th and final plex for a while, and my right eye was all the way closed...not how its supposed to be after 5 sessions of plex. Im weak all over, and i dont know why. I thought id be better.

Im having horrible headaches, and one leg just collapsed, coming up the stairs.
HOW, have you guys coped with this disease? I thought i was doing well, but when treatment doesnt work, ITS SO HARD.


Im on 1000mg of cellcept, 60mg of prednisone. What else will work? anything?

I have my specialist appointment at duke on the 15th...so maybe that will lead to some new discovery.


I hope you all are well.