Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 02-06-2010, 06:02 PM #1
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
Default

Wow! Great information, Nicky! I didn't even know there was an anti-ganglionic achr test. That is definitely something I'm going to ask for.

I was so sorry to read what you'd been through. It's so hard to get answers for our problems! In the meantime, you've really suffered with this. Thank you so much for sharing what you went through - sometimes our symptoms can get so personal. I haven't been as constipated as you are but I definitely haven't been moving things through. It's scary to look down at my gigantic belly and feel so full and think that I could be retaining this awful, toxic stuff in my body!

I read the abstract of the article you linked. Very interesting! I'm pretty sure I've had long episodes of dysautonomia. I'd stand and my heart rate would go up to 145 and stay there. That was accomonpanied by a lot of dizziness. Ugh, it was horrible and very debilitating and lasted for months. I'm going to have to figure out a way to get the full article. And when I do I'll take it to my gi.

Thank you so much! I have lots of researching to do now . . .

Ally
bluesky is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (02-06-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
facial paralysis- Looking for others Rebe General Health Conditions & Rare Disorders 4 07-07-2009 06:05 AM
Paralysis no limit for skydiver BobbyB ALS News & Research 0 11-25-2008 11:53 AM
diaphramatic paralysis and mg teresa/bobby Myasthenia Gravis 1 01-10-2008 12:13 AM
Stem cells target paralysis BobbyB ALS News & Research 0 11-30-2007 08:19 AM
Diaphragmatic paralysis Mackerdoodle Spinal Disorders & Back Pain 3 09-04-2006 03:18 PM


All times are GMT -5. The time now is 10:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.