Hi and thanks again for your replies!

Lizzie - you have to laugh when things like that happen. I'm glad I made you laugh! Yesterday my face went and that cracks my husband up because I end up talking like prince charles! We also have a term for when I fall over due to balance or my legs giving out which is "break dancing"! I choke quite a lot too, because of its frequency we no longer react. We had a friend around doing some decorating for us and I started choking mid sentence. When the choking ended hubs just turned to me and said "have you finished now?" and we collapsed in laughter. My friend couldn't work out why we were so calm. After he had been here a few days my choking didn't freak him out so much!

Redtail - the previous 4 sfemg/emg have all been negative. I've only ever recorded one jitter which isn't enough for a positive result. So here we go again! Although some Dr's now accept you can be negative on anti-bodies, they still find it hard to accept you can have a negative sfemg/emg. Despite Angela Vincents findings that a positive SFEMG/EMG is found in less than 70% (at Oxford) in patients with no detectable antibodies.

Thanks again,

Love
Rach
No ptosis as yet this morning......will it last? who knows?

I hope it lasts!

Thinking of you.

Thanks,

it didn't last and the facial weakness is back! Oh well x

Love
Rach

LOL, Rach, yes, we do that too. I choke on my food a lot too. It drives me nuts, and I avoid many of the food I love, like fresh baked bread. Yum.
I had someone tell me a funny story, kind of .. you'll see.
He said that he was a an MG dinner, and a few people started choking, all the MG patients barely noticed, but the doctors in attendance kept starting to stand up, but the patients would just wave them to sit down.
All the MG'er finished most of their plates, but the doctors didn't because they were feeling like they were on high alert, and couldn't eat. They were a little nervous.
Understandably, but the MG'ers were like, "ah it's old hat" It was funny when he described it.
Someone once said we should all take a cruise together, and then someone else said the ships doctor would jump over board when he seen what group was going to sail. lolol
Oh well, we gotta laugh at our bodies, or we'd cry.
I don't drink, but the way I fall, I worry my neighbors will think I'm a drunk. lol
thank you for the laugh, it was with you, not at, I understand
Love ya
Love Lizzie

LOL...Thanks, Lizzie...I got a good laugh out of that! lol

I don't have too many choking episodes so much anymore. But chewing is sometimes still an issue. I find the worst things are the muffins from Muffin Break, they are very stodgy, and I struggle to chew them, they clag up my mouth and make it hard to chew. My sister sits and smiles while I try to empty my mouth of muffin with a mouthful of tea.........just as well they are yummy and I try to eat them in very small pieces.

Redtail,
I do the same thing with Cracker Barrel's Cornbread! I love it...but I do it everytime!

Thank you all for your replies, I loved that story about the dinner with the MG patients and their Drs it can be a bit like that here sometimes!

So sorry I haven't been on before to say thanks for your contributions. Ive been quite poorly and in bed for a few days. I think I have worked out what is going on and I have a kidney infection. My kidney infections don't present in the usual way so often catch me off guard! At least I haven't had one for 6 months! Just waiting to hear from my GP today. Just need to get rid of it before my trip to hospital next week.

Thanks again

Love
Rach

Hey Rach,

Sorry you've been having a few really rough days, but glad you figured out it's a kidney infection and hopefully can start antibiotics soon. I know you don't want to get your hopes up too high for your hospital stay next week, and I don't blame you. I'll be keeping good thoughts that you will finally get some answers and the help you need. Hang in there and feel better.

Hugs,
Pat