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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi speterson,
Welcome to the group! I am very sorry to hear your Dad is going through such a difficult time, but glad he's been diagnosed. I was thinking the same thing as Joanmarie. Do you know how much Mestinon he was taking for the week it was working so well? Do you know if they have decreased the dosage? Just from my own experiences and others here, there is a chance he was getting too much Mestinon. Was he having any side effects such as excessive saliva that may have caused him to choke? This is just a thought, I am not a doctor. It's good he is in the hospital and I'm sure they will figure everything out and put him on the correct meds. I will be keeping good thoughts. Please let us know how he's doing. Take care ![]() Hugs, Pat |
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#2 | ||
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New Member
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YES - definitely too much saliva; it is driving him crazy. Okay, I'm going to talk to the neurologist ASAP. Many thanks to you and this forum.
s Quote:
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#3 | ||
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WOW, he is 91, bless him! To be DXed at that age amazes me. You are a wonderful child to be coming to this site to seek information that may help him.
Please keep us updated on his/your journey through this crazy illness! |
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#4 | |||
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[FONT="Comic Sans MS"]Awe, 91? Get a hold of your local MDA, or the MDA closest to the Hospital his Neuro is affiliated,or where he is getting his IVIG. They can help you and him a lot.
Also just the sticky threads here for information, and get a hold of the Myasthenia Gravis foundation http://www.myasthenia.org/ They will be able to get you information that will help you and your Dad understand what he should do, shouldn't do, and what meds, or chemicals he should avoid, as there are several that can cause him more crisis' . Come back here, or any other Myasthenia forums, and ask tons of questions, we'll do our best to help. Make sure he is being seen by a neuromuscular specialist who has patients with MG. Love and Prayers Lizzie ONT] |
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"Thanks for this!" says: | speterson (02-27-2010) |
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