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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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Hey Susan,
I'm sorry this has happened to you. We have enough to deal with having this disease without the added stress caused by a clerical error. This has happened to me in the past and was eventually corrected as I'm sure yours will be too. ![]() ![]() Hugs, Pat |
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"Thanks for this!" says: | DesertFlower (03-10-2010) |
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#12 | |||
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Thank you Lizzie.
I suppose I don't really know if my MG is mild. It doesn't feel mild, but compared to others with MG maybe it is mild. All I know is that I haven't been able to do what my doctor said I could, which is work and live normally, as if Mestinon is the magic medicine that makes is all go away. I am thankful for Mestinon, but I can't imagine how anyone can lead a normal life with MG no matter how mild. You are right about bringing someone with me to the doctor, I will do that next time. It is important that my doctor have a record of how I am feeling if I apply for disability. ![]()
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#13 | |||
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Thank you Pat. I hope they change their minds on this one and correct it...I am going to give it a few days before I call again.
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