pickingupthepieces
I felt the sincerity in your post and it brought tears to my eyes. I understand from both perspectives. I have lived with MG for 16 years now and I lost my mother to cancer 10 years ago. Please accept my condolences on the loss of your mother. It is sooo devastating to lose a loved one, especially your mother. My mother was with me every step of the way when I was first diagnosed with MG and I miss her so much. You do have the memories and love of your mother with you for the rest of your life. Her spirit will continue to be with you as well.

I am sorry that your family was hit with MG in the manner that you were and my prayers are with you and yours during this difficult time.

Please feel free to post and comment whenever you like. You are now part of our MG family and we need people like you to bring awareness to this disease. Do whatever you can in the memory of your Mom. I'm sure she is smiling down on you at this very moment.

Blessings,
Shari

Oh, thank you so much to all of you for your kind words. They bring comfort and solace to me on a very dreary, rough day.

Believe it or not, I HAD heard of MG! When I heard those words, my memory bank pulled up Aristotle Onassis, as I remembered his diagnosis MANY years ago! But, truly, that was the extent of it...I just knew that it involved muscle weakness. Oh, how I have learned so much more. I have two older siblings, one of whom is a retired physician--he had to really think back to his med school days at UNC, along with a lot of research, in order to be up to speed in our talks with the medical teams. I must say all the physicians involved here were wonderful and I feel like she received excellent care. However, the doctors here had never diagnosed anyone my mother's age and there were so many variables involved, as you well know...kidneys, heart being the major ones, simply because of her age.

Are any of you involved with the Myasthenia Gravis Foundation of America? Just wondering as I start to think about ways to turn this into something of benefit to the MG community.

It is so good to know that I have a "family" here and I so appreciate you welcoming me.

Rach, Jana and Shari, thank you SO much for your kind words. It is so nice to know that I have a place here and I appreciate you welcoming me. Your words bring comfort and solace on a dreary, rough day.

Believe it or not, I HAD heard of MG! When I first heard those words uttered, I reached back in my memory bank and remembered Aristotle Onassis from YEARS ago being diagnosed with MG. The extent of my knowledge was very limited...I only knew that it involved muscle weakness. I had never heard of acetylcholine or Mestinon and was only vaguely familiar with the neuromuscular junction. One of my 2 older siblings is a retired physician and recalled only a cursory study from his days spent at med school at UNC. We both did quite a bit of research to be prepared to ask intelligent questions in our meeting with the medical teams. I have to say that her doctors were wonderful and she received excellent care.

Are any of you involved with the MG Foundation of America? I was just wondering as I am beginning to find ways to turn this into something of benefit. My parents left a wonderful legacy centered on God, family and love and I would like to continue that in a positive way to help others traumatized by this devestating disease.

Thank you again for caring...and thank you for your prayers. We could not have gotten through any of this without the prayers of His people. They mean so much and carry me through. In fact, as I read the posts here, I pray for each person as they go through their day. Hugs and love to you!