Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 03-26-2010, 04:38 PM #11
Stellatum Stellatum is offline
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Thanks, Annie, that helps a lot. So when they talk about the "half-life," they only mean that typically, or on the average, it's at half-strength after three or four hours--but even that varies a lot by patient. And even if it's at half-strength after four hours for a particular patient, it doesn't mean that the strength decreases at a steady rate, before or after. I'm catching on! Thanks for all your help,

Abby
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Old 03-26-2010, 06:05 PM #12
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Thanks everyone. I am doing better. My Dr. thinks i was on the verge of a mini crisis....but still not a crisis as my breathing was not difficult....thank GOD! But he did say that if I have a hard time breathing...to get back to the ER.

And of course my predisone was increased and I will see him on Thursday when he will reevaluate my meds. At that time, I am going to see about getting a steady dose of mestinon versus the up and down doasge.

Thank you all!!!!
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Old 03-26-2010, 06:11 PM #13
AnnieB3 AnnieB3 is offline
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Good, I'm glad you dodged a bullet. Be aware that you could keep getting worse if you don't back off on activity for a while and get more sleep.

Annie
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Old 03-26-2010, 07:06 PM #14
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Thanks Annie! You were really the voice of reason when i really needed it...I can talk myself out of anything.

And this really WAS a wake up call. I am still living my life normally and pushing myself to get things done, same amount of rest....and I just can not do that anymore. I really NEED to stop and slow down and get REST.

I don't know why this is easier said then done...

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