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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-27-2010, 07:28 PM | #1 | |||
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Hello all!
It has been a wild past couple of months - just wild - and to say I have been "in the dumps" in a HUGE understatment, but am looking forward to better days in the future! I did get a new neuro who just dumped me b/c my MG is "just too complicated" for her. I'll still have my infusions @ the center where I currently get them, but she was scared off by a recent trip to the ER via ambulance. The pain is back again and I have since found out that I have had numerous breaks - I go back again on Tuesday to have another MRI with contrast and bone density scan. As crazy as it sounds I really miss my old neuro. I could call him @ 4:00 am and he would call back @ 4:05 am. If only he hadn't screwed up my leg in the first place............. I interview new neuros next week....... On the positive side, my broken femur is healing nicely........ Devon just turned 18!!!!!! 18!!!!!! I can hardly stand it! My grandpa is in the hospital - he had a big transfusion - 3 pints of blood..... How are all of you doing? I've missed you all so much! Love. ERin
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Erin . |
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03-27-2010, 08:00 PM | #2 | ||
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Welcome Back!! Erin!
It's terrific to hear from you! I'm so sorry things have not been easy. And I do hope you are able to find a new neuro that will really be able to help. Good Luck with your search and know that thoughts and prayers are with you. Sue |
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03-27-2010, 08:12 PM | #3 | |||
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Hi Erin,
welcome back. Sorry you've been through so much these past few months. I'm glad you're getting a MRI and bone density scan, may show up some of the reasons for your pain. Look forward to seeing you around here again Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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03-27-2010, 08:39 PM | #4 | ||
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Hey Erin,
Welcome back! It's so good hearing from you. So sorry you're still having a rough go of it, but better days are coming. Good luck with finding a new neuro. I have no doubt you will find one who can help you. Hope they have your pain under control. What meds are you taking for the MG now and are they helping? So happy you're back sweety! Take care. Big Hugs, Pat |
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03-27-2010, 08:53 PM | #5 | |||
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Erin, (((((((hugs)))))))
It's so nice to see you posting! Love ya Been keeping you in my prayers. Love Lizzie |
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03-28-2010, 05:18 AM | #6 | ||
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So glad you are back honey!
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03-28-2010, 05:35 AM | #7 | |||
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I have had you on my mind lately and have been worried about you! I am so glad that you posted an update!
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03-28-2010, 11:50 AM | #8 | ||
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Erin! I am so glad to hear from you. I have thought about you often and was sending good healthy vibes your way! Even with everything you have going on, your post still sounds cheery .... you are AMAZING!!!! I hope that you find a neuro that is a good fit for you and your "complicated" case. (My neuro likes to call mine an "atypical" case but it's all just semantics right!) It is just nice to have you back. Take care ~ Mel
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03-28-2010, 12:36 PM | #9 | ||
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Erin ,
It's so good to hear from you! I don't post as regular as some of you but I always read the threads and really missed reading your posts. So sorry to hear about your current Neuro. Good Luck on finding a new one. I'll continue to keep you in my prayers. Blessings, Shari |
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03-28-2010, 03:19 PM | #10 | |||
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Erin,
Good to have you back. Keep us informed of your progress! You are always in my prayers! Hugs, Simon |
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