Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 03-29-2010, 04:00 AM #1
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default Update on me

I've just got off the phone from the Oxford Dr's secretary.

It is his opinion that I don't have MG. They can't explain why my eyes move in a myasthenic way or why I respond to mestinon.

I'm now left with no diagnosis and no treatment. What the hell do I do now?

I'm just numb.

Rach
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