Hi all. I'm at a concert. My doctor told me I might have an infection somewhere which was covered by my prednisone. And right now my throat feels like its closing and my nose is all stuffy. I'm having chest pains and really dizzy. What do I do? Or what woukd u sugguest?

I'm just freaking out a bit. I just got some water and its a little hard to swallow and I'm very dizzy shallow breaths. I'm worried that this infection is pissing off my mg and before the night ends something may happen. Yet I'm outside waiting for my friends. I don't understand how it crept up so quickly. And my eye is droopy. I took mestinon. 60mg before coming...it doesn't work.

What you do is NOT post on a forum. What you do is go to the ER.

There is no way to tell if it is H1N1, a cold or bacterial infection. GO IN. Doesn't matter what is ticking off your MG.

Be sensible. MG is NOT sensible.

Let us know how you are.

Annie

But now I'm feeling much better. Should I truley go in? My nose is a little clearer. I'm very close to the er.

Tyson, Do you get panic attacks? Some of what you are describing could be that.

When are you having plasmapheresis?

And did you mean that your doctor said an infection was "covered by your Prednisone" or that the Pred is masking the infection? The second would more than likely be the case. And being immunosuppressed makes you more open for infections. How do they know you have an infection? Blood tests?

I still think you are in denial. If you keep pushing, you will end up in the ER again.

The body becomes "worn out" after too much of this pushing it to the limit crap. Think about what the treatment of plasmapheresis alone does to your body. Now think of having to do that when you are 50, if you make it to that age. Yeah, I'm trying to scare you. You have to manage MG with not only drugs but with alternating rest and activity. Even if you reach remission, you still will not be able to "push" things or you may go out of it.

You have to decide what is best for you. Is your pulse high when you do the littlest things? Are you still getting dizzy, like say when walking? It's always better to be safe than dead.

But I think you need to back the heck off on activity. Maybe spend some time, out in nature now that it's spring, and really think about what you want your life to be. You can't keep pushing like this.

You know I care. But tough love is really what you need right now. Please slow down. Not stop but be realistic.

Annie

Annie- Im not having panic attacks. Something is wrong. Im never nervous, or panicky when these things happen, it was late, i was at a concert with many people, as it was hot in there, and hot out today, my MG probably was acting up, and with my infection is not helping my case any. They never declared me as having an infection, but gave me antbiotics. Im starting those tomorrow.

My plex is tomorrow at 10. I called my doctors emergency number, but he hasnt gotten back to me yet..and im just kind of wondering if they would see me tomorrow or something when im getting the plex done to asses what is happening..

Earlier i was also having blood come out my mouth, and nose. Not sure what that was from, yet im going to go to bed, and if my doctor ever calls back, ill do as he says.

Yet my hand is really weak, and im going to bed. my nose is so stuffy, i can hardly breath through it.

But my pulse does jump when doing something small, like switching around in bed, or getting out a seat.

I do get dizzy when i walk, when i dont feel good.

But, im going to bed.

CALL 911! ...dont waist time here. Take care

Do you guys honestly think these are reasons to go to the ER? What if they just send me home? Ill feel like a faker.

Today i went in for more plex, and told them about my bloody noses, and they checked my bleeding time, and and some other tests, because they wernt going to do it if it was bad, yet, it was okay.

Something that started with an F was low..but dont remember what it was. They did it anyway, and im sitting at home now..
I was supposed to go to the beach with friends this weekend, for spring break but the doctors told me today i couldnt go because it would be too hot.
I feel so lame, to my friends. Because i cant go...we had plans for so long.


But, the doctor did say to go when i had chest pains, but i dont want to just go and then have it be nothing...


Thanks again.

Tyson,
I am really sorry that you have to deal with all this at such a young age. It is very hard to sit on the sidelines when you want to be in the game but you really need to understand that with MG sometimes you have no choice but to be a spectator. You have to listen to your body no matter what your mind wants to do.

You are not being lame if you cannot hang out with your friends on Spring Break. You are just making sure that you will be alive to see another Spring come. They are young and have no idea what the possible outcomes could be if you push yourself too much. True Friends will understand no matter how young they are. I'm sorry that you are missing out on the Beach but your doctor is right, Heat and MG do not mix well.

As far as going to the hospital, you never know when that possible "nothing" turns out to really be something. Don't take that chance. Chest pains can be very serious, go to the ER if you start getting them again.

As always, I will keep you in my prayers,
Shari

F as in Ferritin? It shows the status of your blood stores.

Well, you came for advice and then did what you wanted anyway. Typical teen!

I would be more embarrassed to wind up in a lump on the floor from a crisis or bleeding out. My Dad had a bleed while on Pred and immunosuppressants and needed part of his stomach removed. You never know if it's going to be a little thing or a big one. Doctors in the ER always tell me that they'd rather someone err on the side of caution. But, hey, what do they know right?

How do you "fake" blood coming out of your nose and mouth? You're not faking. And you have a disease that could kill you. I think they'll take all that and your other symptoms quite seriously.

Hope you will continue to be okay. Sorry you couldn't make it to the beach. I'd love to be at a beach right about now.

Annie