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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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i am not new to mg, have had since 1992.....but have been in remission for 3 years. was wondering how many of you, and for how long can a remission last? i'm so worried about all my mg problems returing. i had dropping eyes, double vision, slurred speech, choking, tired, had to not work anymore and become stress free. was on mestinon only, it worked part of the time, sometimes it made mg worse i think. am still tired alot, have thyroid problems, they run in my family, have a granddaughter with graves disease, she s doing good, took out her thyroid at 6 yrs old. somehow all is linked. thanks for listening
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#2 | |||
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Grand Magnate
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#3 | ||
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Welcome to this wonderful site Dees!
You will quickly learn that this a group of very knowledgable and caring people. Can't really speak to the remission issue but it is a definite goal of many of us. I have hypothyroidism as well as generalized MG. I wonder if there is a connection too? Take care, Melanie ![]() |
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#4 | ||
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Hi Dees - glad you found this site - and welcome!
I only take Mestinon and have no thyroid (or thymus) issues - but I'm sure there are folks here who will weigh in with their first hand experience. Sue |
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#5 | |||
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Hello!
I have no experience with remission. I hope your remission continues, take care of yourself.
__________________
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#6 | |||
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Welcome Dees!
I haven't experienced remission, but I hope to one day...I hope that yours continues...There are some here who've had remission for over a decade, and others probably much longer... I agree with your about the autoimmune issues being connected...I know of a lady who has Grave's and whose daughter had juvenile MG....Seems like Graves and MG like to travel together, whether it's in the same person, or through relatives... Nicky |
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#7 | ||
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hi dees, no remission here either, only diagnosed a bit over a year. but feeling pretty good lately. Nice to meet you.
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