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Old 04-10-2010, 03:28 PM #9
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Nicknerd Nicknerd is offline
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
Posts: 547
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Hi Desert,

Yeah! It's such an anomoly! I'm actually pretty strong too, so I just don't know about any of this! But I also really push my limits, so it might just be sheer will...I still *try* to do push-ups, but it's so hard now! I used to be able to do 30, even when i had difficulty doing 1 (which was never a problem...I could always do at least 10, but maybe that's normal)...But I'd push myself to do 30....Normally, in the past when I'd reach a certain number, it'd get easier, the way it's supposed to...But time and time again, it'd be exhausting to do the same number...That's when i kenw there was a problem..

I've been doing them recently...I can get up to 10 (I'm trying to get rid of the gift prednisone gave me: upper body fat)...

One time, when i went to the hospital, the neuro. guy on-call said that my weakness was really strange...My hand grip was super strong, but my wrists were very weak as well as my fingers...He said my shoulders were weak, but my arms were okay, but my forearms were weak too...On another note, I can't do sit-ups at all anymore...It's almost impossible! My sister almost fell over laughing when I tried to do one (it's okay 'cause I was laughing too hehe) lol.

It probably is just a combo. of MG, not being physically active all the time, but being physically active in very particular areas (like doing push-ups) that causes these strange weakness problems...I also suspect that maybe the thymoma caused some other weird antibodies that could be joining the party in the weakness depot as well...

I'm so relieved about your muscles appearing larger after doing some workouts...That's probably normal, I think...I think that I looked it up before, and I read that it's normal...Or maybe it's neuromyotonia...I'll take neuromyotonia over MMD, I think! LOL

About your hands getting stiff- Oh God, what a relief! I thought that i was the only one...Maybe this is a normal part of MG, eh? Or maybe you and I have some other crazy antibodies...

Sometimes it's the feeling of being completely alone with something that makes it so hard...It's nice to know that others have the same experience (even though I wish that it was a favourite TV show, or band that we shared instead!)...Makes me feel like less of a weirdo!


Nicky
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DesertFlower (04-10-2010)
 


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