Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 04-15-2010, 02:07 AM #1
brandonc brandonc is offline
Junior Member
 
Join Date: Apr 2010
Location: Chicago Suburbia
Posts: 74
15 yr Member
brandonc brandonc is offline
Junior Member
 
Join Date: Apr 2010
Location: Chicago Suburbia
Posts: 74
15 yr Member
Default new guy

Hey everyone

I'm new to this site, by some miracle I came upon it while writing a paper for one of my classes. I am sooooooo relieved to come across people that I can talk to and have an idea of what I am going through. I am now 20 and I was diagnosed last year with MG and I'm on everything right now prednizone, mestinon, cellcept, you name it. After being bounced from doctor to doctor and misdiagnosis to misdiagnosis for a year I finally had an ear, nose, and throat doctor take a random blood test because of something he read in a medical journal earlier that week and it happened to be MG. If he hadn't read that magazine I don't know if I would have a proper diagnosis still (I was diagnosed will asthma, allergies, and just plain nerves from leaving for college). Now after taking pills I can get through the day-to-day things alright but is not the same at all. I just remember 2 years ago I was at the top of my game and I was looking at college scholarships for football and wrestling, now if I don't take my medicine at the right time I cant even get out of bed in the morning without a complete struggle. I cant imagine taking all of these pills for the rest of my life, with all of the side effects that im feeling all of the time and the thymectomy is looking like a great option for me right now and I want to know what people with MG think about the surgery.


Brandon


P.S. Sorry if all of this sounds a little bit whiney, I felt like this would be the place to talk to people about it
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