I am drinking alot of water, i made sure of it. So i dont think it is that.

Annie- I would much rather be in the ER right now. Yet, my aunt and uncle think its just a headache, and i cant go alone because im only 17. I dont know what to do. They think its all in my head sometimes, and that kinda hurts. But im so weak right now, i dont know whats going on, both eyes droopy, right arm horribly weak, neck and head is bad, and coming up the stairs, pulse sky rockets yet again and its hard to breathe when getting up the stairs...my neuro said to wait and see him on monday.

I dont have a bp cuff. I really do need to get one, yet again my aunt and uncle dont think its nessecary, and i dont want to buy it..


I understand they cant tell whats going on for the most part if its not happening when i go in, but i dont have a system where i can just go in. My aunt has four kids, and a husband whos not here alot, and so its hard for me to just be like, I NEED to go to the ER. They always ask why, etc. But by now, I KNOW MY OWN BODY! So i know i should go in, but right now i dont have the resources, and i guess it takes me going into a crisis for them to realize that.
.

I know u dont like the accutane, but its supposdely, 'not hurting me' says the dermatologist. I guess i trust him.

I just want to know why my MG is so bad right now. I JUST had plex.

But, my breathing is shallow, and i have school in the morning, so i guess i should try to rest so that I may be able to go to school tomorrow.

Sorry i frustrated you. I dont mean to do that, i know my health is important, i just need an advocate, and i wish i had a mom to be that, but right now ive got myself, and wish i could be in the er.
But im going to sleep instead.


How are you?

There's a little something called minor emancipation. If there was ever a need for it, you're it.

http://www.ncga.state.nc.us/EnactedL...rticle_35.html

No offense meant to your aunt and uncle but their attitude is basically threatening your life. There's nothing they can do if you dial 911. NOTHING. Because the police show up too. If you honestly believe this is a situation where your life "feels" threatened, then you need to get medical help.

It's possible your MG is being overmedicated but I doubt it. You get worse the more you do. Has anyone checked your thyroid lately?!!!!

This may be personal but when do you turn 18?

I think your aunt and uncle are being selfish. Again, the ER doctors have ALWAYS told me that it's far better to go in and have it be nothing than to be hurt or dead.

Only you can make that figurative and literal "call."

Don't worry about me - I'm fine. I've had this disease a lot longer and can at least cope with it. I seriously think there is something going on that could harm you. It doesn't really matter if it's the drugs or what, you are having moderate to severe symptoms.

Can you call the ER and get an opinion? Maybe put them on SPEAKER, if you have that option, and let your aunt and uncle listen in.

Do you have a nurse at school? There has to be a way to get around this adult supervision nonsense when you know your own body and need help.

Let us know how you're doing.

Annie

PS - I'd like to shove a few studies onto the desk of your dermatologist. Maybe Accutane by itself in a person without a disease and not on any other drugs is "ok" but not in your situation, and especially not with "thick blood."

Tyson,

I just looked up the side-effects of Accutane, and a message board or two about it...It seems that a lot of the problems you've been having are listed as side-effects of this medication...

I even came across a person who mentioned having 'trouble speaking' during class since he started taking it....

Turns out this causes muscle weakness...Not sure if you're aware of that or not because I wasn't...

It apparently can cause direct damage to the muscles, and CK levels will start to increase (this shows damage to muscles)....It also causes nose bleeds, rectal bleeding, and mentions slurred speech (i guess this is part of the muscle weakness of the tongue maybe?)...

I know that prednisone is used for severe acne...The minimum dosage is 30mgs...You started the accutane before prednisone, right?

I'm not sure how this medication works...Do you have to taper off of it, or can yuo just go right off?

I know taht looks are important..Believe me, a big part of the reason why I'm getting off pred. is vanity, so I understand....But this medication seems really toxic..Is there really any point in taking it, especially when prednisone might accomplish the job itself? Also, if it's causing a lot of sx for you as side-effects, maybe it's better to get off it? Sorry, I've never had severe acne...I had a bit before and was troubled by it, so I don't know exactly how you feel...It just doesn't seem worth it to me....There are the really necessary meds., and the ones taht are too toxic to be worth it- they do more harm than good...

Nicky

Hi Tyson!

I'm not a Dr. but I do watch a lot of those Mystery Diagnosis-type programs.

One of them had a lady with headache sx like yours. She also had a taste of metal in her mouth. Turns out she had a leak of her spinal fluid.

Whatever it is, I hope its easily fix-able. Best wishes to you!

Tyson,

I am worried about you.

I think Nicky has a good point about the Accutane, I think you should stop taking it. At least look up the side effects and talk to your doctor about it. This drug has some serious side effects.

Take care of yourself and don't be afraid to go to the ER or call 911 if you need to.

We cited a bunch of stuff before about Accutane, Mrs. D too. Good find, Nicky. It's like it doesn't sink in or something. Accutane can't be stopped abruptly without a doc's ok though. I was on it decades ago, so I personally know about the crap.

No drug is benign.

http://www.ncbi.nlm.nih.gov/pubmed/9747221

http://www.ncbi.nlm.nih.gov/pubmed/18377609

Have they checked your CPK levels?