Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 04-17-2010, 09:39 PM #1
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Oh, Tyson, OF COURSE I believe YOU. That's plain silly.

What I don't believe is how doctors are taking all this so lightly. You're taking it a little lightly too. I've seen too much in all these years and know how bad situations can get when the obvious is ignored. I don't want that to happen to you.

No, it's not that I won't keep posting. It's just that I can't keep saying the same thing over and over. You have to start taking control of this situation and take it seriously.

If you do have a high CPK from the Accutane, it will hurt your muscles. My Aunt had polymyositis, which causes an increase in CPK. Anything not normal is, well, not normal.

My point about side effects, which maybe I wasn't clear about, is that you are have moderate to severe side effects. That in and of itself is enough to stop a drug. Doctors talk about side effects as if they are benign. They aren't. Some are, sure, but yours are nothing to take mildly. They are causing a high pulse, bleeding, increased weakness, chest pain . . . lots of things.

Don't be unduly upset by this information but do take it seriously. Calmly tell your doctors that your symptoms are not normal, that they are concerning you, that you have new information and that you both need and want answers.

Your aunt and uncle must understand that it isn't only a crisis that can happen to you, right? Sometimes people simply can't handle medical issues.

Sometimes it's absolutely necessary to get a 2nd opinion. Not all specialists are created equally. They don't all have the same magical base of knowledge. Some know more than others. And some are willing to actually keep researching for their patients!

Trust your instincts. Do what you have to do to stay well.


Annie

And maybe they should have checked your testosterone levels, before the acne treatment. http://acne.about.com/od/acnetriggers/a/hormones.htm

Last edited by AnnieB3; 04-17-2010 at 10:23 PM.
AnnieB3 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Quick Question - LDN KarenMarie Multiple Sclerosis 2 01-14-2009 05:25 AM
quick question nikmcjo Reflex Sympathetic Dystrophy (RSD and CRPS) 2 11-17-2007 03:20 PM
Just a Quick Question GregD Parkinson's Disease 7 02-08-2007 02:56 AM


All times are GMT -5. The time now is 11:01 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.