Hey all.

So i asked about accutane, and even showed him the article. I tried to explain to him that my weakness in my arms is somewhat static and that in the morning and night i cant brush my teeth or wash my face without stopping, (myopathy)But he continually says its my MG, and with heat, its just going to have to be something i live with until my thymectomy and cellcept kick in. He told me after a year, we should be on a better ground MG wise.
He told me i couldnt play soccer at a college level, which i should have figured as much.
AND HE SAID TO CONTINUE TAKING ACCUTANE, and that it has not problem with MG. How can he say that, after reading that article.

I am MUCH more tired after starting the accutane for a second time. And the headaches are worse.
I hate it.


I HATE when i go in feeling great to the neuros. He still said i wasnt good, but well enough to not be on plex for now. I miss my old neuro alot.

I asked him to do a CPK and Vitamin A test, and he would not do it. He said if i could convince my internist to do it, that was fine, but he wouldnt.

That was basically a worthless app. Though i guess i mean something to him, because all of his follow ups were booked till september and he got me in because he wanted to see me in may.
Yet hes not the neuro i want him to be.

Maybe he will realize that after im in the hospital with some toxic disease.


hope your all doign well.