Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 04-21-2010, 10:18 AM #5
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Jaimee and Art Chick,

I am not officially diagnosed. My antibodies are negative, both the AChR and MuSK. My EMG was normal. My single-fiber EMG was "borderline."

Nevertheless, my neurologist thinks I have myasthenia gravis, just because of my symptoms. My symptoms aren't even that classic! My most troubling symptom right now is lack of balance that I think is caused by weak hip muscles--I tilt back and forth from the waist when I walk. I also have weak neck muscles and weak arm muscles. These symptoms mostly improve on Mesitnon. I had double vision once, before I started taking the Mestinon.

Anyway, I'm telling you my story just to show that different neurologists handle these things very differently. My neurologist is sending me to a mg specialist, but he's so sure I have mg that he's willing to start me on Prednisone before I even see the other specialist.

If your bloodwork comes back negative, but you're convinced that whatever diagnosis you eventually get is wrong, don't be reluctant to ask for a second opinion. My neurologist knows that some mg patients have negative blood tests.
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