Hi Jaimee,
I am seronegative but was diagnosed with MG on the basis of symptoms and single fibre EMG. I hope that your road to diagnosis is quick. My first symptoms appeared in Aug. 07 and I was diagnosed in Nov. 08.
Take care ~ Melanie

Jaimee,

My understanding is that it's a neurologist who would diagnose you with MG. However, there are some neurologists who specialist in MG. The one I'm going to specializes in "neuromuscular disorders." One way to find a neurologist who specializes in, or has experience with, MG is to write to the muscular dystrophy association. MG is not a kind of muscular dystrophy, but the muscular dystrophy association has MG as one of its covered diseases.

The website is mda.org. You can click on the "contact us" button at the bottom. I emailed them, and it took a couple weeks to get a reply because my email ended up in someone's spam folder. So it may be better to call.

I hope you can get some answers! My biggest nightmare--bigger than even being diagnosed with some horrible progressive disease like MS, or with a brain tumor--was having the doctors think I was making it up while I got steadily worse and worse...so as bad as MG is, at least it's a diagnosis.

Abby

omg. . .i didn't know the antibody test could come back negative and i could still have it. i really hope for a more definitive answer than that. this all started for me a long time ago.

in the winter of '06, i couldn't walk for 2 1/2 months and no one could figure out why. the stress was so bad i stopped sleeping for a month and had shaking also that has now returned that no one can understand (non-epileptic). i was given an anti-psychotic to sleep so i wouldn't become psychotic from lack of it and i was able to walk slowly thereafter. fastforward 3 years to attempting to get off the meds began the shaking again and leg weakness and now the meds won't work anymore. now they are finally interested in what is the actual cause of it all.

my right leg gives out intermittently, my balance is crap, i'm dizzy and nauseated a lot, and my left eye droops on and off. my arms get tired washing my hair, i pant after climbing the stairs sometimes for no reason, i get things caught in my throat sometimes. i have progressive bilateral hearing loss and tinnitus 24/7 and they think i have meniere's disease too now along with migraines. i mean this has been an absolute nightmare. but after reading about mg, i really think it fits in a very eery way. i don't know if other things are like that and i just want this to end????

Art Chick, I'm surprised you haven't heard results yet... Maybe they did what people here suggest and actually sent it out to Mayo or somebody who knows what they're doing. I'm sorry you're dealing with this. I understand!

i got the antibody results back and that one is negative. . .but after reading on here about variability in morning and night, my husband and i have been testing my leg strength in the morning and the evening over the last week and my legs are about 50% of a normal person's strength in the morning and then they drop to almost no strength in the evening. i mean can barely lift my leg at all, like maybe 7% strength. and i need help up the stairs often and have some trouble walking but only in the evening.

they aren't expecting the other blood work(MUSK?) back from Athena labs until the first week in may. i sent a ct of my chest from an urgent care visit last month into my neuro that takes care of my migraines to see if he can visualize any issues with my thymus in the meantime . . .

but i seem to be getting worse. . .any other ideas??

You said "that one is negative". Did you mean those THREE are negative? (Binding, blocking, and modulating?) If they didn't run ALL three AChR antibody tests, they SHOULD!!

Hi, I'm so sorry you're going through all this.
I just wanted to pipe in and let you know that ALL Tests for MG, can come back negative, and you still have Myasthenia Gravis.
You can also have a negative blood work this time, and during the next flare, it can be positive. I'm so sorry to have to let you know that, I know it just adds to all the frustrations.
There are other conditions that can cause some of the MG symptoms, anything from Narcolepsey right down to Diabetes. Some Auto immune diseases..etc.
But you do sound like the classic MG patient. If you have any questions at all, you're more than welcome to ask me. You can even send me a private message if you like.
Please know, many many MG'ers have been where you are. I was first sero-negative, and then sero positive.
Most importantly, seek out a specialist who has other MG patients, and is familar with understanding the symptoms of MG. Not all Neuros are a like unfortunately.

Love Lizzie