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Old 04-21-2010, 12:28 PM #8
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Jaimee,

My understanding is that it's a neurologist who would diagnose you with MG. However, there are some neurologists who specialist in MG. The one I'm going to specializes in "neuromuscular disorders." One way to find a neurologist who specializes in, or has experience with, MG is to write to the muscular dystrophy association. MG is not a kind of muscular dystrophy, but the muscular dystrophy association has MG as one of its covered diseases.

The website is mda.org. You can click on the "contact us" button at the bottom. I emailed them, and it took a couple weeks to get a reply because my email ended up in someone's spam folder. So it may be better to call.

I hope you can get some answers! My biggest nightmare--bigger than even being diagnosed with some horrible progressive disease like MS, or with a brain tumor--was having the doctors think I was making it up while I got steadily worse and worse...so as bad as MG is, at least it's a diagnosis.

Abby
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