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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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The same thing happened to me last November after being off Prednisone for a month. Neuro started me back on Pred beginning with 5mg and kept increasing it, but no help. Mine was so bad I couldn't drive, put on make up, and had trouble walking about in unfamiliar territory. After 3 weeks still no improvement in DV, and then started to experience general MG symptoms which up to that time I did not have. Long story short, he put me in the hospital, had 4 plasma exchanges, and moved up my thymectomy. About a week after the surgery the DV finally went away and has been gone since then. I'm now off the Pred again after 5 months on it, and am keeping my fingers crossed it doesn't come back again.
For me the only thing that works for DV is Prednisone. Mestinon doesn't help if I already have the DV. I've always been on Mestinon since diagnosis in July 09. Sorry your DV is back. I know how bad it can get. Hope you and your neuro find a quick solution. |
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#2 | ||
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Junior Member
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The most frustrating part is that after I became fed up enough and desperate enough to post about it on here, it take like 5 hrs to clear up for no reason whatsoever, it just comes and goes as it pleases
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#3 | ||
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New Member
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I just found out I have myasthenia gravis a couple weeks ago and I've been taking Mestinon (3) tablets per day at 60mg but it doesn't do a thing. It sounds like I may have to go to a steroid? I see the doctor in a few days. I have ocular only, but feel weakness in my hands too.
Is it possible that I will have double vision forever? Will steroids help? I'm ready to take the patch off. |
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