Hi, Madnurse. Do you have a more informal name?

Don't let doctors get you down. Sometimes they are simply out of their comfort/knowledge zone and don't know what to say. Isn't that what a computer or a Physicians Desk Reference is for?!!!

The fact that you have an abnormal thymus (did they define what that meant?) means that you need to take it seriously. Thymomas are quite common. And you should consult with a pulmonologist about both that and the lump they found in your lung. They are the EXPERTS at lung/mediastinum issues.

Have you ever taken photos of your face when you are doing well and then when you aren't? When I began doing that, I was amazed and horrified at what happened to my facial muscles when I got worse. My nose, which is support by muscles, actually drooped too!! Scary pictures. They are very helpful, however, in documenting ptosis/fatigable muscle weakness.

Did anyone suggest a brain MRI? Numbness is not a symptom of MG but when muscles get really weak they may feel "numb." One-sided weakness can be from other causes too.

Do you have double vision? Take your pointer finger and slowly move it back and forth (side to side) in front of your eyes, keeping your head still. Then try bringing the finger towards your face slowly. Any double vision? Sometimes you might only have DV at certain angles from your eyes, like off to the sides. A neuro showed me how to see this since I only thought I was having blurry vision years ago. A neuro-ophthalmologist can do tests that determine fatigability of the eye muscles, which is useful, and may do a Tensilon test to see if they improve. They could at least do the ice pack test. MG will temporarily improve due to cold (not too cold). You could try that with your eye muscles too, to see if a cold washcloth improves things.

I hope you can get answers. They should test the weaker muscles in the face.

Annie