[madnurse]

Hello all. I am new to this forum. I have read some posts in the past, basically trying to get a feel for other's symptoms to see if they were like mine. After seeing a whole mess of doctors, with no real results and just a "wait and see attitude", I decided to post to see if I could get any insight from other folks on here.

! am a 35 year old female and started getting double vision in mid January. At first, it followed a distinctive pattern. It would be absent or very mild on mon and tues, more pronouced on wed, and by thursday and friday it was constant. Now, several months later it is always present...but worse when i look up or to the left (just by looking at me, you can see my eyes don't line up). In the past 2 weeks, the right side of my face has started to tingle and i get a feeling of numbness/heaviness. When this happens, it almost seems as if i shouldn't be able to talk or move it (but motor control is fine, My nuerologist just said "that's unusual".)

CT scan showed some abnormal tissue in the area of the thymus (report said thymoma could not be ruled out), MRI was clean, EMG was normal (this was done on my arm/hand and i am not having symptoms anywhere but my face). And that's about it......MG was thrown out as a possible diagnosis by an opthamologist I saw based on double vision and ptosis. Endocrinologist changed my thyroid meds/levels (I have hashimoto's thyroiditis) but my vision has only gotton worse.

ASny thoughts would be appreciated. I feel as if the docs aren't listening at this point. It is frustrating to wait for appts and then have them not hear you. Thanks!!