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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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I'm new here - still trying to get a firm diagnosis - but since you mentioned other AI conditions, I'm wondering if you have ever been tested for Celiac Disease? It's much more common than most people realize (1 out of 133 people have it; 97% of them don't know that they have it).
I'm not saying not to pursue MG testing/treatment; just look into the possibility of CD and/or gluten sensitivity (which will not show up on any blood test, but will respond to a GF diet). It's frustrating to have symptoms, but no "positive" test results.... |
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#2 | |||
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celiac disease, like myasthenia has a "known" presentation, and it is rarely considered in patients that have atypical symptoms.
but, in fact a signficant number of patients with untreated celiac will have unsual "out of the box" symptoms including obscure neurological symptoms, and even findings on MRI. also, not all patients will have findings on commonly used tests. I highly recomend the book by Jerome Groopman-"how doctors think", which describes in the first chapter, a patient with celiac which was diagnosed as anorexia and other psychiatric problems for more then 10 years (does that sound familiar?). http://www.npr.org/templates/story/s...toryId=8946558 alice |
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