Rob, just reading your "old posts" -- you said that the heat and sweating often made you feel better -- ME, TOO!!! What's with that???? Most MGers think I'm whacko for CRAVING the Summer and the HOT weather -- 'cept for Desertflower .

I've been wondering if my antibodies were somehow pouring out through my sweat !!!

The only thing that improves for ME (I do not have MG however)
in the heat is my thyroid problems.

Hypo people feel much better in the warmer temperatures. So do make sure that is checked just to make sure for you.

Jana- Don't know what's with that, all I know is that is was real. I felt better in the warm sun and temp. But then again I was born and raised in SE Arizona so that's what I'm used to. When I'm ill I always feel better in the sun no matter what the malady is. I always tell everyone that my blood is based on chlorophyll not hemoglobin.

Hi all-

Here are some of the links that I based my regimen upon. The first one, by Dr. Walter Last, was to me the most important.

http://tinyurl.com/26qtn9p

*edit*

http://www.optimox.com/pics/Iodine/IOD-09/IOD_09.htm

These will get you started and to thinking.

Oh by the way, I am NOT going to ruin my thyroid with the supplemental iodine I am taking. To the contrary - when I started taking it I felt better and my fingernails got stronger. Interestingly, they had become thinner and rather brittle for the year prior to my MG. I thought "oh well, another sign of old age". Didn't know it was also a sign of iodine deficiency. And after almost a year on extra iodine my thyroid tests came back just fine and my fingernails are still strong.

In a later post I'll detail some more what I have done and am doing as well as more info concerning iodine and manganese. Probably going to be several days though before I can git 'er done.

your second link is leading to an expired page so could you please correct the link.

Yes, it's changed a bit since I was there last. However, if you click on Myesthenia Gravis in the neurological column it will take you to the page I originally intended. I just did it and it works.

you will need to post the exact link please as that is a page with products for sale and so not allowed as it stands

edited in:
sorry but in the absence of you editing, I have had to remove that link as we dont permit general links to websites with products for sale that way

only a specific link with information relevant to your topic is ok

Aries,
Have you ever been tested for Celiac Disease? There is a higher incidence of MG in people with CD. When our youngest daughter was diagnosed with CD, I found out that I had it as well - and now I am being evaluated for MG. I've been on a gluten-free diet for 2 years now, and I have a feeling that kept my symptoms from being worse than they are.

What most doctors don't realize is that CD is MUCH more common than originally thought. It is currently estimated that 1 in 133 people have CD, and 97% of them don't know that they have it - that's 3 million folks in the US who have CD, and 2.9 million of them who are walking around without the first clue that they would test positive!

The bad thing about the blood test for CD is that a person will only test positive for it if they already have Stage III or higher damage to their intestinal tract; anyone with less damage will not be considered to have CD, even though some researchers think that they do, indeed, have it.

Many more people are believed to be sensitive to gluten, and they will NEVER test positive for CD, even though a gluten-free diet will help them immensely. The problem with gluten sensitivity/CD is that consuming gluten causes the villi in the intestinal lining to become blunted, which in turn causes the body to not absorb all of the nutrients in the food which is being eaten.

There is a LOT more information on the website *edit* (I can't post websites yet....) - that's kind of the "bible" for people who have questions. The good news is that for most people, following a strict gluten-free diet for life will eliminate a LOT of problems (just click on the sidebar at that site for a look at conditions that are associated with untreated CD). Most people's intestinal tracts are back to normal within 1-2 years of starting a GF diet. More food manufacturers and restaurants are offering GF options, as more and more people are becoming aware that they have CD.

Once a person's intestinal tract is healed, they will start absorbing more vitamins and nutrients, so many of their problems will go away. Unfortunately, with some conditions the damage has already been done - that is why it is so important that more and more doctors become aware of how common CD is in the general population; the sooner it is diagnosed, the fewer complications a person is likely to have later in life.

Interestingly enough, some soy food/milk products have an incredibly high gluten content, so some people who are eating "healthy" may actually be doing more harm than good! I hope this information is helpful -

Rob, I agree with you -- I don't follow this 100% -- far too difficult for me. And it is HARD to get the foods that are guaranteed pesticide free in my area unless I grow them myself (which I DO in the Summer ).

I was a patient of Dr. William G. Crook -- a leader in the Candida movement -- I was tested for allergies more than 30 years ago -- put on the regime -- taught how to cleanse my system and look for problems. I avoid CHEMICALS like they are the PLAGUE!!

I have very serious Bulbar -- can no longer work -- BUT, I have managed to stay OUT of the hospital so far (knock wood). In the Summer, I edge closer to "normal" -- except I can't talk worth anything.

Anyway, I ONLY use Mestinon -- and the basic tenets outlined on your first link. Whenever possible, I try to get my vitamins and minerals from foods -- I do, however, take fish oil, Vitamin C (mostly when sick with an upper respiratory), and D3 (during the winter). Yogurt is a mainstay -- active cultures are a necessity.