I need to say that you guys are getting into areas that are highly complex and involve multiple body systems. Everything you are suggesting here that is supplement-related depends on a variety of things from a person's individual metabolic rate, to their overall health, what other drugs or supplements they are taking and the doses involved. Not to mention that many of these OTC's are not FDA approved or regulated.

Sure, it's great to discuss things that "might" help our immune systems but this is almost bordering on saying that they will cure MG. It's dangerous territory to give false hope to patients. No, I'm not saying that's what's being done but you don't know who could be reading this and will blindly take supplements without speaking to their doctors.

I'm all for using sensible supplements, seeking out 2nd opinions on alternative therapies, etc. But I hope you guys will realize that MG, and any traditional or alternative treatments, are not a "one size fits anyone" disease.

I'm glad you have found things that work for you, Aries51. It may not work for others and the risk involved for others in "trying" may be too high.

Annie

No, that is something I never did run across. I'll do a search on it sometime soon and see what's being said.

Thanks,
Rob

Didn't I say to pay attention to your own body? Didn't I say that no one knows your body better than yourself? What have I said. Research and read. Research and read. Decide for yourself if you wish to try something different. I believe that most people are intelligent enough and have the right to make their own decisions on what they wish to do with their own bodies. Also, I am not one that thinks information should be withheld from ten wise individuals just because the eleventh one might be an idiot and do something stupid. FDA approval and regulation is an area I don't EVEN want to go into here.



"Might" help our immune systems? I think I helped my immune system immmensely. Where did I ever say I was "cured"? I made it very clear in one of my posts that I do NOT consider myself cured. And yes, you are saying that I may be giving false hope to others. How dare you try to take away any hope at all. And if I had "blindly" listened to my doctors and to people like you I am sure I would not be as well off as I am today.

Again, I made it very clear in my posts that what worked for me may not work for others. But it DID work. Yeah, it sounds as if you are all for seeking out further information, just don't try any of it.

The "risk" factor - if any - is not for you to decide for anyone else. Clean up your diet? Stop eating garbage and foods you may have an intolerance for? Be sure you have sufficient nutrients for key glands and body processes? Be patient, persistent, positive and give your body time to heal? Wow, that IS risky. I'm glad I didn't try that. I might have gotten better if I did.

I do have the right to my opinion and to not be personally attacked for it.

Annie, no offense, but that works both ways. I think that Rob feels like YOU attacked him FIRST.

He DID make it REALLY clear from the beginning that this was HIS way -- and that we should tread carefully -- and research -- and that it might not work for us all.

Annie, I know that you don't read ALL of the posts with as much clarity when you aren't feeling well -- you have said as much. I think that you may have missed when Rob posted this.

There is ROOM in this forum for ALL points of view -- we NEED all points of view if we are EVER going to SOLVE this MG puzzle. We do NOT have the same symptoms OR test results -- there cannot be ONLY ONE ANSWER!!!

PLEASE -- can we STICK TOGETHER -- AGAINST the "wicked" neuros (but, NOT against my sweetheart neuros -- whom I love dearly)?!?!?!?!

Jana, I did not attack Rob and I very clearly stated that he has the right to do whatever he wants. Maybe you should both reread what I wrote.

I may not read all posts but what I do read is quite clear. My mind is the only thing left that does work.

I was trying to bring some balance into the conversation about supplements. What's good for one person is not good for another. I even said I was glad it has helped Rob. That is one reason I do not talk about exactly what I take on a daily basis. It's up to each person to decide that, WITH their doctors.

And, no, the FDA is far from perfect but the companies out there are even farther away. You don't even want to know what the conditions are in some of the production facilities. If Johnson and Johnson had deplorable manufacturing conditions for products like Tylenol and Benadryl, I'm sure you can imagine.

And, believe me, if I wanted to or even had the desire to attack someone here - which I don't - you would know that I did. That is not what I did. I examined a "position" on a topic. I did not attack the person behind it. There is a HUGE difference. I was being civil and responsible.

And I am now done defending myself.

if there is room for all points of view, then why would someone be jumped on for expressing theirs? Posting a personal viewpoint of caution is not attacking, but singling someone out with those replies that followed gives that perception....

as this thread seems to have deteriorated into such an exchange, we feel it is best closed