Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-12-2010, 10:34 AM #1
draggin' draggin' is offline
Junior Member
 
Join Date: Jan 2010
Posts: 54
10 yr Member
draggin' draggin' is offline
Junior Member
 
Join Date: Jan 2010
Posts: 54
10 yr Member
Default update- home from hospital

Ok so ended up being admitted to hospital after memorial day. 4 days of medrol IV's with the mestinon.
My sugar didnt get too bad considering I am type 2 but I did have to take insulin.
When I went in to hospital, I could barely walk with walker, breathing was very labored, swallowing was bad and hands were not working well .
After the 4 days I was walking, slowly, on my own (not even a cane). Hands are ok and breathing much better. I also was taught a way to swallow that gets the most out of my throat muscles so Im not coughing and clearing my throat as much. So, Im glad I went in.
Now that Im home, Im on 16 days of prednisone with the mestinon....then just mestinon.
The hope of my neuro, who by the way, likes to try the least dangerous things first and move on as needed, is that this will work for at least 6-12 mos before having to do it again.
If not, then he said we will do IVIG and the cancer drugs because he doesnt want me on long term steroids and Im glad for that.
So far so good. Legs still are not working well enough to walk any distance. But well enough to get around house from room to room. As for getting out, im looking in to a scooter if insurance will pay for it.
Im glad I have a neuro that takes the more conservative approach. Mestinon got me through pretty well for 20 yrs so I cant complain too much about having to move on to other treatments now.
draggin' is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
9 days in the hospital. . .home today. update on "do i have it?" art chick Myasthenia Gravis 42 06-20-2010 09:54 AM
Home From Hospital Porkette Epilepsy 7 04-09-2010 05:52 PM
I'm home from the hospital Brokenfriend Bipolar Disorder 11 10-29-2009 01:49 PM
Home from the hospital... Pat 110 Myasthenia Gravis 29 10-03-2009 12:45 PM
Home from Hospital BJ Survivors of Suicide 10 09-01-2008 04:30 AM


All times are GMT -5. The time now is 08:49 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.