[erinhermes]

Hello all!

It has been crazy lately! As some of you know, my back surgery did not work out AND I caught MRSA while in the hospital. It has really knocked me out. When this is all over I'm going to have to buy a new sofa b/c I have ruined this one

I've been really down recently. My pain is through the roof and I'm so fat that I can't do anything and have stretch marks in places I didn't know existed...........

I went to Scott and White to see of they could help me, but they said my MG is pretty much under control - it is the side effects of all the meds that are hurting me........ever feel like crying and crying?

All I know is that I can't take this pain much longer. It is ruining my entire life...........

erin

[suev]

Erin,

I am really sorry you are going through all this - - especially the pain.

If your MG is under control. does that mean that you can begin to change your meds so that you might have fewer side effects? I mean I know you can't just stop...but are they suggesting that there is any benefit in beginning to taper off?

As you are able, pls keep us udated. There are so many people here who care about you and miss you. Wishing you some pain free time!!

Sue

[redtail]

Hi ((((Erin))))

I'm so sorry you are going through this at the moment, it really sucks!!!!!
I think of you often, and you really don't need anything else right at the moment.
take care

[KathyV]

Hi Eri,

Eventhough I've only been on this forum for a little less than a year, I feel like I really got to know you. In the beginning I was so confused and every time I read one of your caring and informative posts, I felt my journey was shared by others.

You've dealt with so much and you deserve a break (not literally LOL) -- and NOW.

I hope things take a turn for the better and you get some relief from the pain. Know that you are in my thoughts and prayers.

Kathy

[erinhermes]

Hi sweetheart!
THank you so much for your kind words...they mean so much to me!

I just need to realize how good I really have it, but it is hard to do sometimes....

What are you up to?

They are going to reduce my pred, but some of the damage has been done already - I have drug induced addisons, brittle bone syndrome and can no longer walk, but at least I have my scooter and a dr that really cares.

I AM on Forteo for my weak bones and have had ramps and pull up bars installed in my house but it is hard not being able to walk anymore.

I think once I lose the weight I will feel a lot better!

I have missed all of you so much but did not want to be a downer. I've been reading most of the posts and am so happy to see new members!

When you get some time, please let me know how you are!

Love,

ERin

Originally Posted by suev

Erin,

I am really sorry you are going through all this - - especially the pain.

If your MG is under control. does that mean that you can begin to change your meds so that you might have fewer side effects? I mean I know you can't just stop...but are they suggesting that there is any benefit in beginning to taper off?

As you are able, pls keep us udated. There are so many people here who care about you and miss you. Wishing you some pain free time!!

Sue

[Tbarney]

Hey Erin, good to hear from you, but sorry you are not doing so well.

I have been putting on weight too, I hate it. I don't take Prednisone though which I know puts weight on most people.

I need to walk more to help with the weight, but sometimes I just don't have the energy.

I'll keep you in my thoughts.
Trish

[shalynn]

Erin, Hi! I'm one of the newbies. I'm sorry you are having so much pain right now. I have a lot of trouble with pain too. Besides the "possible MG", I have something else going on with my body.

Anyway, it sounds like you have been through a lot with the surgery, MRSA and MG on top of it all. I'm sure that has taken a toll on your mind as well as your body.

Even though I'm a newbie, I've read through many of the posts. I've read a lot of yours and you offer so much help and encouragement to others. Don't feel bad about posting about your bad days, others want to return the favor and help you out.

Take care.

[rezmommy]

Always sending good thoughts your way Erin. Feel better soon.

[erinhermes]

Hey sweetie! How are you? Gosh I've missed you guys!

I know it's a small thing, but 200 lbs on a small frame just hurts!


I'm using my scooter now. I just can't do it anymore, but I know things will
get better!

Let me know how you are when you get some time!

Love,
Erin

Originally Posted by Tbarney

Hey Erin, good to hear from you, but sorry you are not doing so well.

I have been putting on weight too, I hate it. I don't take Prednisone though which I know puts weight on most people.

I need to walk more to help with the weight, but sometimes I just don't have the energy.

I'll keep you in my thoughts.
Trish

[allen L]

when I first got diagnosed with mg, and couldnt believe how my body decided on mutiny, I was so discouraged and depressed I thought my world had ended.
It was reading your posts Erin, and some others here that convinced me to take it one day at a time and things will get better.
And I did, and I let my neuro and physicians do their thing, and Ive regained control to a certain degree.

You will always have my thoughts and prayers. I am sending you all the positive vibes I could muster from the Atlantic Ocean side of the country.
do you feel them? Im sending all the good stuff in hope you feel better soon, real soon.