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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Quote:
The second thought was prompted by your comment that the rash is painful - did anyone consider shingles? I had shingles the summer before my freshman year in high school, and it was a red bumpy rash that was INCREDIBLY painful. Just something to consider... |
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#2 | ||
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Junior Member
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i was thinking shingles too? my husband got it several months ago. It was extremely painful for him. Im sorry you are having so much trouble! hoping for the best!
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#3 | |||
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Dont you all think I WANT to go to the doctors? I had to cancel my appointment because of my aunt and uncle. The ER told me i had to make an appointment to be seen the day after. They dont have another appointment open till next week. My aunts commitment is important, yet my uncles could be avoided. My aunt has lyme disease and still is trying to get treated. Yet she moved her appointment from 11 to 3, where mine was at 4:30, for no reason so i could have gone. But oh well.
Thanks for all your thoughts everyone! |
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#4 | |||
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I booked an appt. for tomorrow at 3.
Hopefully thatll work. Can a dermatologist test for CD? What should i have them do? |
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#5 | |||
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I'm so sick. I'm tired, my stomach hurts any sleep I get doesn't help i wake up just as tired. I still have to babysit today, im so tired and my breathing is a little compromised. I'm very frustrated and want to get away.
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#6 | |||
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Member
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I too thought of shingles, but it would seem that they would have known it was that when he went to the Er. At least I hope they would.
Shingles are horrible! I've had them a couple times. Horrible. Myrsa can also cause pain, and a rash like that, this is why I wondered if this is what they were thinking when they said skin infection. Please let us know Tyson, either way, you could wash with a disinfectant you can get over the counter at a drug store. For the life of me the name has slipped my mind. Ask the pharm. he should know. If I remember the name, I'll let you know. sorry. Best wishes for tomorrow. Love Lizzie |
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#7 | |||
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Member
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Tyler, a dermatologist can test for Dermatitis Herpetiformis - that particular test has a spotty record for "catching" DH, but it's worth a shot. The test for CD is a blood test, and I don't know if a dermatologist can do that or not.
The fact that your stomach hurts as well might also indicate CD. As I said on another post, CD can be "triggered" by a trauma/stressful event. In that case, it will come on like gangbusters..... A Celiac diagnosis is straightforward IF your blood test and/or skin test comes back positive for antibodies. Unfortunately, sometimes neither test will come back positive, EVEN THOUGH you do, in fact, have Celiac Disease (sound familiar?). As I said before, some people are gluten SENSITIVE (and will never test positive for CD) - my husband is one of those people. Even though these folks don't have CD, they still feel much better on a Gluten-Free diet - and chances are that they have some level of damage to their intestinal lining; it just doesn't show up on any tests. One of the things that I noticed when I went on a GF diet is that I had SO much more energy. That's why it was so frustrating to me to start feeling tired again a couple of years later, before I knew that I had MG. I shudder to think how tired I would be if I hadn't already been on a GF diet! When I completely eliminated gluten from my diet, my energy level shot up within 24 hours. I don't know how much it might help in your case, but it is worth giving a GF diet a try. Just BE SURE to get tested BEFORE you eliminate gluten from your diet; otherwise, you could skew the results of the test. Good luck, sweetie - I hope that you get some answers real soon; it's awful to feel bad and not know why! |
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#8 | |||
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Member
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One other thing that I wasn't aware of until I read about it on another thread. If you are currently on Prednisone/immunosuppressants, the antibody/blood test for CD MAY COME BACK NEGATIVE. You could still have CD, however. While the Prednisone will suppress the antibodies, it WILL NOT stop the effects of gluten on your intestine, if you have issues with gluten.
You might want to request a genetic test in addition to the bloodwork and/or skin test. You will want to ask for the HLA Test for Celiac Disease - this will tell you if you carry one of the two genes that are seen in 95% of people who eventually develop CD. Now, if you can't afford/don't want to do all of that testing, you can always just do a trial GF diet for a month, but you will have to COMPLETELY eliminate gluten from your diet - NO EXCEPTIONS!!! The only downside to that is that you won't have a data point to work from in the future.... |
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#9 | |||
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Member
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I remembered that name of the liquid skin cleaner, it's Hibiclens. It should help you. Unless for some reason your doctor says no to it.
Hope you're feeling better. Love Lizzie |
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