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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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I have been getting 2 IGIV's monthly for 18 months. I have never gotten any remarkable improvement like you did from the infusions.
I am better now but do not know what to attribute it to. IGIV's, cellcept or mestinon all while taking reducing ammounts of prednisone. With the reaction you had from the infusions I would definetly try to do what Juanitad suggested Good luck; Tony |
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#2 | ||
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Junior Member
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i asked my neuro about doing ivig more frequently and maybe less like suggested and im not sure if it just because he only has a few cases of Mg patients and they seem to be doing really well. But he told me that it is best to wait 3 to 4 weeks between infusions. and in his words " i don't have any patients that need one monthly" so i am wondering if maybe i need to find a new neuro who might be more willing to be more aggresive seens how i am so young, it seems to be one of the only things to work really well for me...and i can't afford to cut back on work ( luckly my husband is military so the infusions and home health care are covered)...
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