Sorry you've had such an awful day! It's one thing to feel crummy when you know why - -- and quite another when you don't!!

I waited about 3 years from when I first started investigating the symptoms with a PCP to when I got hooked up with my current neuro (who really, really gets it). There were stops and starts in my journey for a dx (cause like many here, I thought they thought I was nuts! - - so when the tests showed nothing....I just quit searching for awhile - - - til I couldn't stand it and started looking for answers all over again!!).

In my case, my current neuro did all the tests (which were mostly neg) - but dx'd me clinically (even before ordering the tests). She said it's easier if you can prove positive antibodies - but it wouldn't change her treatment plan. (I guess she was referring to insurance coverage? I don't really know.)

Anyway - don't give up. Keep searching til you find the right doc - be it neuro or PCP or whatever. I know it can get really discouraging - but you have to keep pushing for that dx. Keep good notes (and test results) and your determination. It will be worth it.

Hang in there - and let us know how tomorrow goes.
Sue

I was diagnosed within a couple of weeks. I went to the dr. with a droopy eye and within 2 weeks they ran many tests, MRIs, CT scans, etc. and called to say I had MG. I had a thymectomy within about 6 weeks.

For about 6 months before I had some weird pains and did terribly on a heart stress test (Couldn't breathe). So it turned out everything was related.

HEY Did you have a tumor in your thymus? Because I have heard of people that had the operation and did not have a tumor.

So I guess the answer is... depends on how many of the classic symptoms they can observe easily, how many positive test results you have, and how good the doc is.

Oh, and how long you wait in between seeing docs, if one is disappointing. I had a disappointment over a year ago, and I'm still unsure if I'm ready to spend time and money to see if another doc will diagnose me.

Not as much because of loss of time/money/effort. That matters but more because of the possibility of emotionally being let down or them even attacking me by saying I'm imagining things.

Scrubbs, I did have a tumor on my thymus. That is why they decided to take it out. It was benign. It is kind of scary knowing that you are missing something that is the control center of your Immune System, but I think it was the right choice.

Coffeegirl, I hope you get some answers. I am with you on the tired part. I am constantly tired and want to nap all of the time. I am a teacher and have been off all summer, taking it pretty easy. I will have a rude awakening when school starts again.