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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi and Welcome!!
I have not had double vision and only take Mestinon. But from many others here, I have read that sometimes it can get to the point where Mestinon is not enough. Have you had a CT scan or are they talking about scheduling one? Some folks have a thymoma that can be the 'root' cause of their MG. Have you and doc talked about more aggressive treatments (like pred or cellcept or IVIG)? There are options - and each comes with its pros and cons. I'll bet lots of folks who have experience with double vision will share their experience. Some go with rest and Mestinon - others with IVIG, etc. It can be confusing - but at least there are options. Sue |
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