Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 08-17-2010, 05:44 AM #2
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
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Hi and Welcome!!

I have not had double vision and only take Mestinon. But from many others here, I have read that sometimes it can get to the point where Mestinon is not enough.

Have you had a CT scan or are they talking about scheduling one? Some folks have a thymoma that can be the 'root' cause of their MG.

Have you and doc talked about more aggressive treatments (like pred or cellcept or IVIG)? There are options - and each comes with its pros and cons.

I'll bet lots of folks who have experience with double vision will share their experience. Some go with rest and Mestinon - others with IVIG, etc. It can be confusing - but at least there are options.

Sue
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