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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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My saga begins with waking up one day with double vision I had a
visit to an Ophthalmologist who said I had dry eyes and use these eye drops. No change. Next came a drooping eyelid and a trip to Urgent care, a cat scan and no diagnosis. Next up, a Neurologist...blood work, MRIs, no diagnosis…. another Cat scan (chest). No diagnosis! ...Given a trial dosage of Mestinon..a little improvement in droopy eye Next up, a Neuro-Ophthamologist..at last...he says "if it is not Myastenia Gravis, I will eat my hat"...doubles dosage of Mestinon...back to Neuro, nerve stimulation test...not sure of diagnosis he said he didn’t see anything..so now I’m on to ALS clinic that specializes in neuro-muscular conditions including Myasthenia. Still have double vision and drooping eyelid. Yesterday my sister talked with family friend (Neuro-Surgeon) and his advice was to go straight to Duke and indicated speed was very important. He even gave us the name of doctor to see. I would love to hear your thoughts and opinions. Oh I am a 70-year-old male. Very active and play table tennis 4 times a week. Thanks, Mike |
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