Finally got the new laptop sorted! So I have had a look at the links you posted. Someone else suggested aan a while ago but I haven't seen the links that you had posted so thank you very much for those.

I, like you think the development of gastroparesis is like my body waving a huge great red flag to the medical profession! But my GP is currently trying to tell me that I have IBS, although he did admit it was very unusual to have vomiting with IBS. I would say its pretty unusual to have IBS without constipation or diarrhoea, and I dont think I have heard of any cases of IBS where you vomit undigested food 9 hours after the meal. But hey I'm not a dr Im just an irritating patient! What the hell would I know? I would like to say I am sick of it - but I am sick so bloody often its no longer funny! LOL

Thank you so much for posting this stuff for me Annie I really appreciate it.

Love
Rach

Rach, I'm sorry your computer broke! Why can't they make those things to last longer?

I go a little nuts with the lack of logic doctors often express. IBD does NOT cause gastroparesis . . . though I'm no expert on it. Gastroparesis is a nerve/muscle thing.

Inflammation in the bowel can be caused by many things, like a lack of stomach acid, too many NSAID'S/pain pills, etc. And finding the cause is always what should be done FIRST!

Didn't you say at one point that Pred helped or am I having a brain fog moment?

I hope you will get someone to run that test. It may not be that either but I can't stop thinking about what it could be and if it is MG plus something else.

I hope you will get some help soon but, more importantly, feel better soon and be able to keep some food down!


Annie

I think I have had very mild gastroparesis for years. I started having migraines when I was 10/11 years old and an attack would have me vomitting undigested food. My GP at the time said that my stomach was shutting down during an attack. On and off for years I would have one maybe two incidents of vomitting undigested food. Ive always had problems with nausea especially first thing in the morning. I remember getting ready for school and wretching when cleaning my teeth. So its always been an issue.Its just slowly got worse.

I have problems with too much stomach acid - I get awful reflux where I can vomit in my sleep. I can go a couple of days with no problems and then woosh acid going all up the back of my throat. However this is a common symptom with gastroparesis.

Prednisolone helped with the MG symptoms like ptosis, but it made me manic and I had a problem that I put on 50lb in five months as I couldn't stop eating. I was fine eating wise when on steroids lol.

Ive been a bit better and I am down to vomitting about once a week now instead of everyday. I have learnt I have a few triggers that make me worse, so onions cause me a lot of pain, diet coke and coffee makes me nauseous, cheese is an issue but I am finding it difficult to leave cheese alone because I love it so much! Smells are bad as well, if the dogs break wind (or even my husband lol) I am wretching where that normally wouldn't bother me. We have a new shower gel and I can't use it as the smell makes me heave. I used to have such a strong stomach very little would make me sick. Its just so bizarre.

I am with you that whatever I have its MG plus something else. The MG symptoms wax and wane at the moment. A couple of weeks ago they were bad and I had to take mestinon. Other times they are managable withouit meds but that is because I have modified my lifestyle so much.

Thanks for your help Annie.

Love
Rach