Annie, Do you have a neurologist you feel you can trust? I think you need to bring all of your concerns up to them. Do you have copies of your records, like the SFEMG?

If Mayo kept your muscles warm, then the chances of the test being accurate are higher.

Was it myogenic jitter instead of myotonic? What did their notes say?

http://books.google.com/books?id=ycx...harges&f=false

This is an odd little genetic disease but it cross referenced with articles on SFEMG and myotonic.

http://www.cigna.com/healthinfo/nord1058.html

I don't know what the answers are for you, Annie. I think you have to do some more doctoring and let them figure it out.

One more thing. Do you have a good endocrinologist? Have they actually imaged your parathyroids, looking for any small tumors? Rechecking that situation is a very good idea.

Annie