Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-20-2010, 12:35 PM #1
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
Default thymectomy/pain med. question

I have thymectomy surgery (including removing all adjacent fat and lymphnodes) scheduled for Friday, November 5th.

Can anyone tell me how long they were on pain meds with the full sternotomy approach? How long did it take until you felt like yourself again? My family is talking about getting together on Thanksgiving 3 weeks after surgery and I am really wondering if that would be way too soon...

debra
art chick is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
TRESA (11-04-2010)

advertisement
Old 10-20-2010, 02:30 PM #2
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
Default

Quote:
Originally Posted by art chick View Post
I have thymectomy surgery (including removing all adjacent fat and lymphnodes) scheduled for Friday, November 5th.

Can anyone tell me how long they were on pain meds with the full sternotomy approach? How long did it take until you felt like yourself again? My family is talking about getting together on Thanksgiving 3 weeks after surgery and I am really wondering if that would be way too soon...

debra
I bet you will be ready for family by the 3rd week, just don't overdo it and let everyone else do ALL the work that goes with Thanksgiving! You should just sit back and enjoy your loving family taking care of you. You shouldn't have any problems enjoying the food either!

It will be 5 weeks this Friday, since I had my full sternotomy Thymectomy. I did not have anything other than my Thymus removed, but I was back home by Monday and only taking Tylenol from then on, right before bed to help with any soreness and turning over in the night. I really wasn't in much pain, except for soreness of my muscles when I moved. This has for the most part all gone away now. The incision its self, hasn't really caused any problems. I did have a problem with a little bleeding from where my chest tube was. It took 15 days to create a scab, so I could leave it uncovered. I also suffered pain from a mild cough, and had to go on antibiotics for several weeks to clear up that. I'm not 100% yet, as I get sleepy during the day, but I push though that now, as I have to go back to work at the end of next week. Having some vision issue, but that seems to be it as far as still showing any symptoms.

Have a great Thanksgiving with your family and best of luck to you as you continue with your medical journey. May it be as painless as possible.

Last edited by lolligrump; 10-20-2010 at 02:38 PM. Reason: typo
lolligrump is offline   Reply With QuoteReply With Quote
Old 10-20-2010, 03:19 PM #3
Juanitad's Avatar
Juanitad Juanitad is offline
Member
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
Juanitad Juanitad is offline
Member
Juanitad's Avatar
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
Default

Good luck with the surgery - I had the same surgery with removal of lymph nodes also. I was in ICU for about a week due to my breathing, but once I went home after a week, I stopped all pain meds except for a little ibuprofen once in a while. Obviously, I did't go out dancing, but at 3 weeks, I was going out to eat with my family and visiting also (with someone else driving - doc wouldn't release me to drive for 4 weeks).

As Lolligrump stated, you should be okay as long as you sit back and enjoy being pampered. Also, a little nap in the afternoon would be okay also.
Juanitad is offline   Reply With QuoteReply With Quote
Old 10-20-2010, 06:28 PM #4
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

Hi Debra.

I was on pain meds, just panadol for about 2 weeks full time, and then as I needed them. I felt able to do simple things like roll over in bed after about 2 weeks, but didn't feel normalish for about 6 weeks.
Hope this helps a bit.
take care and hope you can enjoy Thanksgiving, it always sounds so great, we here in Australia of course don't celebrate it :-)
Kate
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
Old 10-24-2010, 04:00 PM #5
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
Default

wow, only tylenol lolligrump? that is the first i have heard of that, LOL!!

and a week for juanitad and 2 weeks + for kate....sounds quite variable. There was another person who was taking pain meds for about a month and then still needed one just at night for almost 5 weeks.

it really sounds like i am just going to have to see how i do as far as pain meds go. i am so nervous about this whole process now and i suppose there is no getting around that. i have IVIG all next week and then pre-op appts and PICC line changing and dressing every 2 days due to problems with the adhesive on my skin--all that will keep me busy right up until surgery.

any advice going in would be greatly appreciated : )

debra
art chick is offline   Reply With QuoteReply With Quote
Old 10-25-2010, 03:03 PM #6
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Default

Debra, I have not had this surgery but deal with alot of pain from the being on to small dosage of meds and such weak muscles I get injured constantly. Just hanging some shirts on hangers after laundry can injury my left shoulder. My neck-head is a constant source of pain as my neck is one of the weakest places and I tremor.

What I have learned is diet impacts pain for and others I have talked to. If you look up anti-inflammatory diet you will find the foods I talk about. And if I drink pineaple juice I quickly notice a lower pain level. They say it is the bromelain in it. One of the foods to say away from in the anti-inflam diet is peppers..red , green peppers. I have directly experienced this before. They are worse for me than say potataoes.

Annie59
Annie59 is offline   Reply With QuoteReply With Quote
Old 10-25-2010, 03:18 PM #7
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Default

Debra, I have not had this surgery but deal with alot of pain from the being on to small dosage of meds and such weak muscles I get injured constantly. Just hanging some shirts on hangers after laundry can injury my left shoulder. My neck-head is a constant source of pain as my neck is one of the weakest places and I tremor.

What I have learned is diet impacts pain for and others I have talked to. If you look up anti-inflammatory diet you will find the foods I talk about. And if I drink pineaple juice I quickly notice a lower pain level. They say it is the bromelain in it. One of the foods to say away from in the anti-inflam diet is peppers..red , green peppers. I have directly experienced this before. They are worse for me than say potataoes.

Oh I forgot to say what pain med I use. It is hydrocodone. If I am having a bad breathing day I take one half of a regular size pill. Advil causes problems for me so can not take. The mestinon is all my stomach can handle. My doc say hydrocodone is one of the safest pain meds.

Annie59
Annie59 is offline   Reply With QuoteReply With Quote
Old 11-04-2010, 07:55 PM #8
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
Red face

Quote:
Originally Posted by art chick View Post
I have thymectomy surgery (including removing all adjacent fat and lymphnodes) scheduled for Friday, November 5th.

Can anyone tell me how long they were on pain meds with the full sternotomy approach? How long did it take until you felt like yourself again? My family is talking about getting together on Thanksgiving 3 weeks after surgery and I am really wondering if that would be way too soon...

debra
Will be thinking about you and your surgery tomorrow. Here's wishing a quick and successful recovery. I bet you will be fine in no time at all! Feel free to private message me if I can comfort you in any way.
lolligrump is offline   Reply With QuoteReply With Quote
Old 11-04-2010, 10:14 PM #9
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
Default

Thank you soooooooo much lolligrump! I was just checking the site one last time before heading off to do all the last minute things tonight before surgery tomorrow. I leave at 5 am. Not sure I'll sleep much but that's okay. . .I have been up at 3 and 4 the last few days anyway, LOL! And I'll be in lala-land soon and on the good meds. Really looking forward to being on the other side of this surgery.

Talk to you all in a while.....debra
art chick is offline   Reply With QuoteReply With Quote
Old 11-05-2010, 06:25 PM #10
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

Hi Debra,

hope all went well with the surgery :-) Hope you aren't in any pain, and you recover quickly.
Thinking of you
Kate
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New (almost) Poster/Question PN and new pain inspirations Peripheral Neuropathy 12 08-02-2010 11:29 AM
Question about new pain med? abrown176 Medications & Treatments 10 06-26-2010 09:35 PM
Question about arm pain HopeLivesHere Thoracic Outlet Syndrome 9 01-07-2010 11:45 PM
pain relief question? help please! peekaboo Fibromyalgia and Chronic Fatigue 5 05-19-2009 03:09 PM
Have a question about pain in another way. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 12-06-2007 07:44 PM


All times are GMT -5. The time now is 06:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.