I agree. It took me 2.5 years before my old docs finally see that I have a problem and I'm not imagining it, nor is it a result of mental/emotional stress or fatigue. I've had to show up with extreme spasticity and foot drop with ankle turned inward before he sat up and acknowledged that its an unusual case. Now he's admitting me on 11/11/10 for a week of tests with a special note to call him when I am admitted. Lol. Somehow feel I'm seeing the light at the end of the tunnel! HE himself admitted during my last visit that sometimes the tests can b negative but it doesnt mean I dont have that disease...

Annie59,

Abby is right, so many tests can come back negative. That's one of the mysteries of this crazy disease. For as much as they know there's that much more that's yet to be discovered.

I'm sure your daughter is as scared as you are, it's very frustrating not knowing whats going wrong with your body, or that of someone you care about so deeply.

Keep the faith, stay STRONG,
Rachel