Originally Posted by Annie59

The best test I had to help clarify my symptoms early on was a pulmonary stress test from the lung fella I have now. He was the one that said after you need a really good neuromuscular specialist soon. 4 months later I was in hosp with the MG crisis. One of the most honest neuros I had early on said I dont understand those when I showed him the really bad NIFs I had when I first went into the hosp in July 08. My currrent neuro takes no stock in my breathing probs or she would have admitted me the last time she saw me. You need a lung doc. Sooner the better I agree. If not for the advocacy from my lung guy and him knowing how I struggle and that this is real and not simple fatigue or depression I would have been dropped by now.

Oh by the way do you all know about the counting test for breathing here? I use this at home to gauge mine. You take a full breath in and count normally out. Be sure not to count faster. This is a bedside test a neuro can do. One of the first student did that with me. I was at 16 when they admitted me. Supposedly at 10 one should be in ICU.

Annie59