Oh! I have another question! The blood test that tests for MG. What is this about? My bloodwork showed negative, but my doctor said that means nothing??

As for the twitching- I get muscle twitches all over, not sure if thats what you mean.

- Yet about the antibody blood test- I still have MG and have tested negative for the 4th time within the last year. Your antibodies could be 'hiding' well enough so that the blood test cannot recognize them. I was diagnosed through an EMG, you may want to consider that- ask your neuro. Expensive test, but if you insurance covers it then you should be fine.


Hope this helps!
-tyson

Hi Tyson,

Thanks for the reply! So for the muscle twitches, is it like your muscle makes your arm jump? or like the kind that's under the skin?

I did have an EMG. Two actually. The first said something in the muscle part about positive waves. After that they thought I might have MG or Mitochondrial Myopathy so they did a biopsy which came back (like most things have!) negative or non conclusive. After that, my neuro sent me to UC Davis Neurology where THEY did the 2nd EMG. That one was a lot more in depth than the original one and they spent a lot of painful time on my neck. I haven't gotten the report yet for that one, but he said something about there being decriments and that he wanted to do a...... fine needle emg? Oh no, a single fiber emg, to confirm what he is certain is MG.

I'm hoping to get that done before the year is over. I've had so many dang tests that I've met my personal deductable so everything is covered @ 100%. But December 31st puts me back on the $ chart. lol