Bluesky, your piece was so helpful. I do have a peak flow meter and tried to do that about 2 weeks ago. After doing it a couple times for 2 days I was worse from the work of it. Now I knw this may sound odd. I was surprised as I hadnt used it since 2006. Alot has changed. The problem was that using it was making me worse. This is what happens to me with breathing tests.

When the young doc used her stethoscope to ck my breathing and I was breaathing irregularly she stopped and said breath normally. I said I am and my duaghter backed me up. But this in looking back means they took the word of the old neuro I saw about the autonomic dysfunc who blamed me for the symptoms.

I know better what I have to do now. A priority is to not lose my mestinon and I did fight for that tho was so sick and out of it that day so I am proud of myself.

Annie59

ALLY: I can not thank you enough! I am AGAIN being sent off as "being far too difficult/complicated" a case for present neuro.

So I get to go see a specialist/research MS/MG neurologist at Univ Medical this next week (Tues).

I got all my medical records/scans/mris and "tried" to begin list of my priorities of concerns but have been putting it off on back burner.

Too heavy a load to process and muddle through.

BUT, You Have Inspired Me to Persevere!!!

So, I will take your wealth of knowledge /experiences and treasure your wisdom.

I know it will help my next visit and presentation.

With all my heart, ALLY, I thank you.