My neuro ordered my thymus scan with contrast, but the radiologist insisted on doing it without. He (the radiologist) said that contrast wouldn't help at all. So I don't know who's right.

Iodinated contrast dyes are on the list of "drugs to be avoided or used with caution" by myasthenics:
http://www.myasthenia.org/docs/MGFA_MedicalInfoCard.pdf

Abby

Whirlwind, I'm so sorry that I can't remember your "real name.

Did he give a reason why it should be done with contrast? Iodine can make MG worse, so if you are not doing well right now you may want to decline his generous offer.

I react to iodine too and have had to premedicate when I did need one (to rule out a pulmonary embolism).

It's your choice whether to have contrast or not. Is the CT itself even necessary? Do you need more radiation in your body? What clinical benefit will you get from having a CT? What clinical benefit will your insurance company get? Will it really contribute to your quality of life?

I don't do testing anymore unless it is absolutely necessary. Tests don't come without risks. If there is a very good, valid reason for a test, great. If a doctor is running one only because they are "curious," forget it.

I hope you are doing okay.

Annie

Annie,
Hi, my name is Nancy, The Doctor felt that the ct without contrast does not show up the thymus gland properly, that is why he wanted it redone with contrast. I am so confused went to my family Dr. today, and he says he will order it now., and gave me pre med as I do not do well with iodine. My family Dr., does not like the idea that the neuro put me on the prednisone., I don't either, but the mestinon just wasn't working right I actually had worse symtoms even with a low dose and then when the dose was lowered to 15 mg he said that was worthless and put me on the pred 10 mg every other day.

Nancy,
another even more comprehensive test which can show the thymus well is MRI ( no contrast,and you can go to "open view" facility). I don't know,why Dr's prefer CT scan (price?),it took me lots of effort to get it done for my daughter.I think you can request this,no matter what they (drs) tell you. CT is not cheap also,and it's much more rediation involved.Hope,it helps.
Marina