[Stellatum]

When my neuro referred me to another neuro in Boston, I googled him and found out that his main interest seems to be ocular myasthenia. I thought that was a bad fit, because I have only very mild eye symptoms.

I just wanted to report that his ocular expertise turned out to be a big help to me. He watched my eyes move, and I don't know what he saw, but he said they move in a way that he's only seen in myasthenic patients. It helped him confirm my diagnosis.

I'm just reporting this in case it might be helpful to someone else. I never would have thought to seek out an ophthalmologist or ocular specialist, since my eye symptoms are pretty low on my list of bothersome symptoms. But I'm grateful it worked out the way it did.

Abby

[TRESA]

I too considered my eye problems as low complaints on the scale of problems bothering me.

As it turned out, it was the main symptom, the doctors could readily and visual observe and gave aid in directing their focus towards my dx.

Who would have guessed. Apparently, the eye vision problems of blurred vision, how pupils dilate, vertical double vision =, ocassional attacks of blindness - all which I considered as minimal are really grave matters to be taken very seriously - I didn't know or realize that these were early waarning signs of something seriously going wrong.

Hello-fog brain at work - plz pardon my stupidity!

[clarkstar]

i am going to a eye specialist monday. my left eye is constantly blurred, i dont know if its the ms or diabetes doing it.

[AnnieB3]

Abby, That's why I'm so annoying about people gathering up info from all sorts of sources like neuro-ophthalmologists, pulmonologists and cameras! You never know where the "key" will come from or what will trigger a neurologists to "get it." I missed my ocular symptoms for 41 years because I thought it was my "normal." When I saw the N-O in 2000, it was easy for him to figure it all out and obvious to him that what I had was MG.

Tresa, I like the neuro-ophthalmology guys because they have "tools" they use, besides the clinical exam, to determine exactly what is going on. I found mine to be more objective than many neurologists. And, no, you are not stupid, silly.

Clarkstar, So does the blurriness continue when you close the other eye? With MG, the blurriness or double vision would go away with closing one eye. Also, have your doctors ever checked you out for antiphospholipid antibody syndrome? People with that often have eye trouble (smaller veins). It's a common syndrome in people with autoimmune diseases, including MS.

I'm just beyond thrilled that you have a diagnosis, Abby. It DOES give people a lot of hope.

Annie

[clarkstar]

hi annie. no, the symptoms remain if i close my other eye. i need them to check me out better thats for sure. i only get worse not better

[Stellatum]

Originally Posted by AnnieB3

Abby, That's why I'm so annoying about people gathering up info from all sorts of sources like neuro-ophthalmologists, pulmonologists and cameras! You never know where the "key" will come from or what will trigger a neurologists to "get it."

I'm starting to catch on. So strange that my severe symptom--the truncal instability--should be so useless in diagnosing me, but the subtle effects on my eyes should hold the key.

I knew you, and the others here, would understand what a huge relief this is for me, to get diagnosed. It changes the whole way I feel about the disease. I'm hoping that the day will come soon when the others on this forum who are still in limbo can share similar good news.

Abby

[rach73]

hi,

My N-O, has seen my eye problems double ptosis, nystagmus, droopy eyebrow and the fact my eyes don't move properly and talks to his students about my MG. However he works for a World Leading Expert who categorically states I dont have MG so his diagnosis is overturned.

Im glad its helped you but for me its done zip! LOL

Rach