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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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Junior Member
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My neurologist said that the sub-q is too new and hasn't been proven in long term trials to be as effective as IVIg for Myasthenia...
I still don't love my port...it is quite irritating still. The wire in my neck seems to be in just the wrong spot when I am trying to go to sleep. I'm skinny and have a bony chest so it is quite prominent and just under my skin. I prefer it to the 5 needle pokes and infiltrated Iv's though. |
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#12 | |||
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Member
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Thanks for the update, Gabe. I had been wondering how things were going with your port. I guess you're just not "port-ly" enough for comfort.
![]() Hugs,
__________________
Lois . |
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