My primary care doctor certainly did not know enough about the MG to treat it but I brought in my test results and he was very upset. He said "This just isn't fair" because I already have Chronic Lyme, Small Fiber Neuropathy, Dysautonomia, Hypothyroidism, blood clotting disorder, GERD, hypoglycemia, and other not so big deal diagnoses. I am already bedridden. Now a serious disease to contend with for life on top of it. And I'm 49 with kids still in high school.

He is upset I haven't gotten in to see my neuro doc yet and was insistent I get in next week. So that is what I need to do. I have to stop waking up at 4 pm when it is too late to even call doctors for appts. I have IVIG Monday and Tuesday and another appt Thursday; how I am going to fit in a full day trip to the neuro is beyond me, but I must get there.

Meanwhile, I'll be on alert for things that would require emergency attention and I appreciate all your help in keeping me abreast of that.

Wow. It's incredible to me that you have been able to sort out the different symptoms enough to get a new diagnosis, though I think you said you suspect you've had MG for a couple of years. I know that when you have one (or several!) major diseases with unpredictable neurological symptoms, it's easy to just put down any new symptom to that.

I get discouraged slogging through my day with the symptoms of MG (I have a pretty mild case), and it is good for me to remember to be grateful for the mobility I have.

Do let us know how it goes. I hope that you can find a treatment for the MG which improve symptoms that you had assumed were untreatable...wouldn't that be wonderful. Thanks for posting.

Abby