Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 01-12-2011, 06:30 PM #1
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Juanitad Juanitad is offline
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I just want to add a caution here about tumors on the thymus. My CT scan and MRi didn't show a tumor either, but when I had to have some swollen lymph nodes biopsied and they were going into my chest, I had them remove the thymus also (being as they were there anyway). This was 5 years after diagnosis. Turns out I had a Stage II malignant tumor in my thymus. Fortunately, they got clean margins, but I had 28 radiation treatments, just in case.

So a tumor doesn't always show up on traditional testing.
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Old 01-12-2011, 09:21 PM #2
shalynn shalynn is offline
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Welcome Codie! You will find a lot of support and information here. It's great that you are part of a study. What a wonderful thing to do to help yourself and others.

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