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Old 01-18-2011, 08:25 PM #1
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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You weren't the waste of time. The doctor wasted YOUR time.

And an MG crisis can be precipitated by ANYTHING, like stress.

If your husband wants to have a wife who feels better, he needs to pitch in, have your back and tell these doctors to help you. Just my opinion.

Do you have a "land line" in the house? Stay close to it.

Maybe your husband is in denial, like lots of people who know someone with MG are. Does he realize that you are in seriously bad shape right now? ER doctors don't all understand MG, especially because they read about one paragraph about it in school. It's hard for people to watch their loved one change due to illness. It can be a hard thing to overcome.

Your husband may need educating too. There must be an MG expert who can do some plain talk to get him to understand.

Again, I'm sorry about all this.

Last edited by AnnieB3; 01-19-2011 at 01:07 AM.
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