I experience my symptoms in a way that I haven't seen described here, and I'm wondering if I'm the only one.

I have various symptoms through the day, worsening as the day wears on--weakness in my arms, legs, and neck, etc. But sometimes, usually in the evening, I have some sort of attack that lasts about half an hour. I get really weak, weak enough to collapse, all at once. Lately I'm also a bit short of breath when this happens. I lie down, and in half an hour or so I feel better.

I used to take Mestinon when this happened, and in half an hour I'd feel better so I thought the Mestinon was making me stronger. But now I'm not taking it at all, and I get stronger in half an hour anyway.

When I have these attacks, I can feel them coming on--they're not gradual. It's pretty extreme--I have to lie down or I'll end up on the floor. Does anyone else experience something similar?

Thanks.

Abby